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  1. M

    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    Here is Dr Hansen’s slides (part 1) and to be noted, indeed dr Hanson went first, then dr Lipkin, then dr Nath
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    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    I watched. Dr Lipkin shared that he still had after effects of COVID, mostly fatigue. He is rehabbing through exercise. Said he didn’t get COVID while in China, but believes he got it during a television interview. From the presentation of Dr Avi Nath, there will be a study examining the long...
  3. M

    Substrate utilisation of cultured skeletal muscle cells in patients with CFS, Tomas et al, 2020

    No offence to you @strategist but so tired of hearing of diet remedy for our yet to be explained disease. This is not a diet deficiency problem.
  4. M

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I believe my C1 is fused to the skull, from birth. I remember this from chiropractor xrays, a long while ago. Go figure, i save myself a surgery :rolleyes: I would not know if this causes me any restrictions, as i do not know otherwise. Maybe head extension is restricted...
  5. M

    Aripiprazole - Abilify

    Hi @leokitten I tend to agree with you to a degree, and you made sure to mention ‘under normal conditions’. However there are certain drugs that require careful monitoring such as lithium, tobramycin, gentamycin and others. Drugs that depend on a normal kidney and liver function will become...
  6. M

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with POTS: the PULSE study (2020) MacGregor et al

    It is a CBT/GET program, and there is a chance that a few patients who also happen to have ME will be harmed by this kind of program. I am not sure whether this team is even aware of this. Personally the cardiologist i saw for POTS recommended i enter their in-house exercise program. It was...
  7. M

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with POTS: the PULSE study (2020) MacGregor et al

    Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular response to upright posture. It affects around 0.2% of the population, most commonly women aged 13 to 50 years. POTS can be debilitating...
  8. M

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    One more comment: when health care systems adopt the bio-psycho-social model of care, it is very difficult to exit that model, which means it condemns patients to not get any other ‘care’ than education About their disease and CBT to learn to cope.
  9. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I am surprised there is no history of childhood abuse’ in their risk factors. Maybe that will come later (sarcastic tone)
  10. M

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    Very honestly, if you do not have evidence that anything is working in terms of treatments, stop telling patients they need to try alternative therapies and supplements, because there is no evidence for that either. And if you are advocating for physician led group therapy and CBT, you better...
  11. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    MSNBC had 2 COVID-19 clips segments of interest tonight. one pertained to the UK clinical trial opabout inoculating 90 young adults (18-30) with COVID and trialling vaccines and treatments on them. The trial is set to start in January but seemingly there are ethical concerns now, since there are...
  12. M

    Cardiac Dimensions and Function Are Not Altered among Females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Iversen et al. 2020

    The key word in this abstract is supine. They tested patients at rest, and horizontally. Would there be any change in cardiac function when tilted vertically? In which way cardiac function would be different when vertical, considering that orthostatic intolerance is present in just about 100% of...
  13. M

    What research do you want to see? (study ideas)

    Biomarkers. We need biomarkers. And while disability support is much needed as it is difficult to prove you are disabled, we need to be careful in my view to not encourage a for-profit test that is not well accepted in the medical community. Ideally a Widely available test that does not rely on...
  14. M

    The biology of coronavirus COVID-19 - including research and treatments

    Here is an article from the university of British Columbia (UBC) about a clinical trial for COVID Drawing closer to COVID-19 treatment breakthrough Link to article
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