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https://me-pedia.org/wiki/Jonathan_Edwards

looks like you could do with a David Tuller. @dave30th how's your spanish? @Aroa maybe you could suggest they contact Jose Montoya? contact details: Alyssa M. Aguilar Admin for Dr. Jose G Montoya aalyssa@stanford.edu

petition seems to have the backing of a number of specialists (note on her twitter feed re tweeting of IiME) eta: firma la peticion = sign the petition

Although I am not keen on the use of animals, I would be curious to know what the effect would be if an ME patients blood (or the serum) were introduced into a mouse or similar; ie if the same 'changes' are effected as in Ron Davis and also Fluge and Mellas test.

Bit worrying when things like this come up on Google searches

The Super-Donor Phenomenon in Fecal Microbiota Transplantation (21 January 2019) https://www.frontiersin.org/articles/10.3389/fcimb.2019.00002/full

if anyone wants to complain to Natelson directly info@painandfatigue.com website: http://www.painandfatigue.com

Parliament of Australia from the Minister for Families and Social Services, Mr Fletcher...

Interesting that Chalder seems to be doing more on adolescents.......largely considered Crawley territory. Have they ever collaborated? eta: ah, just spotted the other authors 1 Department of Psychology, University of Bath, UK 2 Bristol Medical School, University of Bristol, UK

not so good for Suffolk

CBT seems to be a general term that covers at least 15 different types of psychotherapy but is not the benign 'talking therapy' that most people seem to think it is. For IAPT they tend to use 'high intensity CBT'. In this research paper they looked at CBT (HI and LI) and counselling...

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didn't know where to put this; in the recent survey done for NICE I spotted this quote from a participant: "‘Assessor viewed attendance at CBT as a way of being able to get out of the house and reduced award’ " can't win eta: another one from GET participant " ‘Taking part almost certainly in...

" Dr Charles Shepherd drew the group’s attention to an important statistic on the executive summary – that 41.5% of respondents reported that their mental health had improved, following CBT. In response, the Chairman explained that she had recently had a discussion about CBT with Dr Paul Chrisp...

yes, well spotted I just copied and pasted it from the MEA site

no thats Esther Crawley Evenbrite Better Science throBetter Data Oct 2017 the one being talked about is Disrupting Your View of ME Esther Crawley TEDxBristol I have a copy.

Makes me think of 'Box' in Logans Run:

An example of this is Derek Enlander, who has said on numerous occasions that they proved that exercise is bad for pwME, having run a trial but did not publish the results. I suspect there are similar other instances where clinicians could publish results of their observations/tests of patients...

this is what could easily happen with the ME/CFS NICE review re CBT/GET which means that any argument to remove them from the guidelines will need to be carefully phrased in particular to counter the argument that 'the treatments help some people'. If they deem that there is 'insufficient...