the problem of lack of recording of harms again a problem
https://www.itv.com/news/anglia/2019-04-02/were-absolutely-appalled-say-mesh-campaigners-over-nice-decision/
(the story is also in various papers)
see also this thread...
"bad definitions have made this diagnosis heterogenous beyond recognition and how many doctors still diagnose people they don’t know what to do with with “chronic fatigue syndrome” by exclusion rather than after thorough investigation and the use of more accurate criteria."
full blog here...
@JohnTheJack said he would be willing, maybe co-ordinate with him
eta: posting link to this thread in case there is anything useful/of interest on this subject
https://www.s4me.info/threads/ad-campaigns-why-hasnt-there-been-one-for-me.7193/page-2#post-129042
michael sharpe has retweeted this:
article here:
https://www.recoverynorway.org/2019/01/24/bard-stranheim/
why is MS promoting LP?
(thought about putting it in its own thread but did not want to give it that much prominence).
eta: just spotted another one he retweeted a week ago
In theory a tweet to the IAfME should alert the various orgs across the world(?)
https://twitter.com/IAforME
(maybe a chance for them to confirm that they denounce PACE and all it stands for(?))
Hyperactivation of proprioceptors induces microglia-mediated long-lasting pain in a rat model of chronic fatigue syndrome
https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-019-1456-x
Personally I do not like this 'rat model' of CFS, I don't think there is anyway that they...
The MHRA (Medicines and Healthcare products Regulatory Authority) has now issued a formal warning to health professionals and introduced new prescribing regulations.
“Disabling, long-lasting or potentially irreversible adverse reactions affecting musculoskeletal and nervous systems have been...
The ME show, threads here:
series 1 https://www.s4me.info/threads/the-me-show.3712/
series 2 https://www.s4me.info/threads/the-me-show-series-two.7873/
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