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most of agenda now available: http://investinme.org/IIMEC14-Agenda.shtml

Phage therapy is widely being reconsidered as an alternative to antibiotics. Phages are currently being used therapeutically to treat bacterial infections that do not respond to conventional antibiotics, particularly in Russia and Georgia. There is also a phage therapy unit in Wrocław, Poland...

Any plans to do an interview with David Tuller? Sometime in the next month would be good re the crowdfund. @Gary Burgess @Russell Fleming @dave30th

"The NHS is probably the most efficient health service in the world, but we’re determined to keep pushing further. Every pound we save from cutting waste is another pound we can then invest in better A&E care, new cancer treatments and much better mental health services.” hmm

Done the transcript for Series 2 Episode 9 with Carol Monaghan (apologies if there are errors, I've not gone through it thoroughly).

not very well written (a couple of half-quotes that don't make much sense). Also, although it initially says a 'crippling rare illness', at the end it gives the 250,000 UK and 17m figure worldwide........'rare'?? there is also an instant poll to identify if readers are ME sufferers/know...

Actually, thinking back to very early on I remember thinking 'I smell like Neil'; (Neil was an odd fellow at work who developed diabetes).

Don't think of it that way. The ME community want you to continue, that's all there is to it. When you think of how much a certain charity CEO is paid, and (although MS doesn't see the comparison) how much QMUL spent to prevent the release of the PACE data........

They have been using/are using dogs for this (identifying disease) for a long time https://massivesci.com/articles/dogs-smell-diseases-diagnose-cancer-diabetes/ Dogs are also being trained to smell malaria and other diseases; I saw a documentary on it not that long ago (sorry can't remember...

Note it's Tymes Trust (no h)

ah, the irony, MJW Esther Crawley supporter

you do realise that a lot of 'them' are members here(?)

The e-learning modules are now up and running. Would be interesting to know the content but apart from paying the £69 don't know how. https://www.stripylightbulb.com/why/healthcare/ doesn't seem to be very difficult to get CPD accreditation for things like this. https://thecpdaccreditation.group/

article in Ohio State University news Experimental blood test accurately spots fibromyalgia Study finds unique ‘molecular signature’ for often-misdiagnosed disease...

@Michiel Tack letter published Fear avoidance in CFS/ME: invalid results https://link.springer.com/article/10.1007%2Fs10865-019-00033-4

When I was doing the Nina Muirhead transcript I also thought about Trudie Chalders lecture and her bit about the 'fear avoidance' model of CFS. Thinking back to my own situation, I remember being terrified, not of exercise or activity (at the time I had no idea it could be harmful and pushed...

heard this being discussed on Radio2 today. https://www.bbc.co.uk/news/health-47699791 whilst in this case I can see why they want to do it; but I think it might be a worrying precedent particularly for pwME given the power that certain people and the SMC have. eta: Maybe they should instead...

I've done a transcript of Episode 8 with Dr Nina Muirhead; On a personal level it struck many chords with me not least the trying to go back to work bit...also occurred to me that 18 years ago (when she started medical school) was when I fell ill. I'll try and do the latest one with Carol...

(List reported taken from the Mirror) full list here: note (ME not on list but FM is) https://www.cambridge-news.co.uk/news/uk-world-news/cambridge-migraine-endometriosis-arthritis-nhs-15339123