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  1. Sly Saint

    Action for M.E. hosts DWP spotlight training

    reluctant? right, like the DWP are going to take that on board. what's all this self-belief stuff? it doesn't stop 'in the early stages' haven't finished reading it but I can't see anywhere that it points out that this whole thing really only applies to people who are 'mild'. It doesn't...
  2. Sly Saint

    Action for M.E. hosts DWP spotlight training

    just found it: https://www.actionforme.org.uk/uploads/pdfs/see-me-toolkit-for-professionals.pdf
  3. Sly Saint

    David Tuller: Trial By Error: My Letter to LP's Study's Senior Author

    thread here: https://www.s4me.info/threads/bristol-randomised-trials-collaboration.5731/
  4. Sly Saint

    Anne Örtegren - A Year On : Invest in ME

    "In memory of Anne we decided to release the tribute to her from last year’s IIMEC13 conference DVD, that occurred prior to the inaugural Anne Ortegren Memorial Lecture. Here, quite appropriately, a distinguished Swedish scientist – Professor Jonas Blomberg – spoke of Anne –" full text and...
  5. Sly Saint

    Mum says she's 'cured' of crippling health condition [ME] thanks to dieting secret [organic food]

    "All my life, I had ME; because of contaminated blood." huh? "Emma currently works at the shop, in St Edward Gardens, and says it holds a special place in her heart as it get her steady when life really proved tough. But Emma needs your help to make her dream of becoming a professional health...
  6. Sly Saint

    CFS (PVFS, neurasthenia, ME), (2010 updated 2018) by M Sharpe, chapter in Oxford Textbook of Medicine

    Oxford Textbook of medicine (published 2010 but updated 2018): Chronic fatigue syndrome (postviral fatigue syndrome, neurasthenia, and myalgic encephalomyelitis) Chapter: Chronic fatigue syndrome (postviral fatigue syndrome, neurasthenia, and myalgic encephalomyelitis) Author(s): Michael...
  7. Sly Saint

    News from Scandinavia

    'old' news (not sure if it was posted before); but Crawley was in Denmark in Nov 2018: 10th Danish Paediatric Infectious Diseases Symposium 9-10 November 2018 Comwell Klarskovgaard, Korsør 10.00-11.00 CHRONIC FATIGUE SYNDROME-epidemiology and treatment Esther Crawley, University of Bristol, UK...
  8. Sly Saint

    FOI request re PACE Cost-Effectiveness Analysis

    Don't know if this has been posted already or not. This is from the MRC in Aug 2018: "The MRC has recently started (with other research funders) a pilot of a new facility for academic researchers to share data via the Clinical Study Data Request (CSDR) web portal. We hope to include the PACE...
  9. Sly Saint

    USA Touro Integrative Medicine Symposium - Jan 6 2019

    https://www.gordonmedical.com/event/touro-integrative-medicine-symposium/ eta: don't know anything about this doctor. (still digging). https://www.gordonmedical.com/eric-gordon-md-speaking-on-the-challenge-of-diagnosing-the-complex-chronic-patient/
  10. Sly Saint

    Action for ME: Our new years resolutions

    I've just been to their FB page and saw a link to AYME but with the AfME logo. This takes you to the AYME FB page, which AfME have renamed "ActionforMEKids". https://www.facebook.com/ActionForMeKids/?ref=py_c If you read the first posts that come up 'Recommendations and reviews'...
  11. Sly Saint

    Brian Hughes (2018): Psychology in Crisis

    if you haven't already watched it, Brian Hughes talk from last year (also transcript) is on this thread: https://www.s4me.info/posts/119199/
  12. Sly Saint

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    funny you should say that: see OHCs latest video (or don't) Why should nutrition patients do psychology? https://www.theoptimumhealthclinic.com/2019/01/ohc-live-31-why-should-nutrition-patients-do-psychology/
  13. Sly Saint

    Article: Verywell: Exercise for Fibromyalgia and Chronic Fatigue Syndrome

    I think the focus on 'exercise' generally is misplaced. Activity encompasses everything that you do and so uses energy. This is something that all the trials on GET seem to avoid taking into consideration. I think better advice would be to try and keep as active as you can without causing...
  14. Sly Saint

    Which Cochrane Review Group?

    Dr Who?
  15. Sly Saint

    Increase in prefrontal cortical volume following cognitive behavioural therapy in patients with CFS, 2008, de Lange et al

    "Another limitation of this study is that we did not compare CFS patients treated with CBT with CFS patients that did not undergo CBT treatment. Therefore, we cannot exclude that the cerebral alterations are due to non-specific factors other than the CBT treatment. However, the specific...
  16. Sly Saint

    Increase in prefrontal cortical volume following cognitive behavioural therapy in patients with CFS, 2008, de Lange et al

    "Cognitive behavioural therapy (CBT) is an effective behavioural intervention for CFS, which combines a rehabilitative approach of a graded increase in physical activity with a psychological approach that addresses thoughts and beliefs about CFS which may impair recovery." Interesting that they...
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