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Merged threads "The charity, reMEmber, for people with ME (Chronic Fatigue Syndrome), has been awarded the grant by the Sussex Community Foundation for its Clinical Network and Children’s Service Project."...

minutes from CMRC meeting April 2019 https://www.actionforme.org.uk/uploads/images/2019/04/CMRC_minutes_10.4.19.pdf

Stoned rabbits are the anti-marijuana movement's weakest ploy yet https://www.theguardian.com/commentisfree/2015/mar/03/marijuana-stoned-rabbits-utah-weakest-ploy-yet-legal-weed

is there a #tag for Davids crowdfunding? be nice to get one mentioned on MS s twitter.:sneaky:

Cambridgeshire and Peterborough NHS guide to Graded Exercise therapy "To equip people affected by CFS / ME with the skills for self-management towards a better quality of life’." Jan 2017, reviewed in Jan 2019 http://www.cpft.nhs.uk/PDF/Miscellaneous/Graded Exercise Therapy Booklet May...

The article he tweeted is by a girl in England who 'recovered' after 3 years using 'graded activity' which, from her description, sounds a lot like pacing having been off school for a year and a half (post glandular fever). maybe someone could ask him what happened to the PACE 10 year...

In the UK in the CMO report 2002 (I think) said that prognosis for recovery after 5 years was not good or words to that effect.

@rvallee nice comment btw; I think the MP who raised the issue of compensation for harms was Ed Davey (at the Westminster Hall debate).

Dr Hazel Everitt is also involved in this trial: The Atlantis study: Amitriptyline at Low-dose and Titrated for Irritable Bowel Syndrome as Second-line Treatment: A Double-blind Placebo-controlled Trial Duration: Start date 1st September 2018 - End date July 2022...

Salford Royal (NHS) both assessments with psychologists; where's the biological? recommended websites, top of the list Action for ME and AYME. http://www.srft.nhs.uk/about-us/depts/clinical-health-psychology/patients/about-our-service-cfs-me/

Living with an unsociable illness full blog here http://notjusttired.com/2019/04/18/living-with-an-unsociable-illness/

I know this is an 'advert' for this lawyer but he gives potentially some useful information for Insurance claims re ME/CFS Andrew Kantor Helps Get Chronic Fatigue Syndrome Sufferers the Benefits They Deserve

I appreciate that; the US have only fairly recently started to realise that by using 'chronic fatigue' it in effect puts it and them "in the BPS camp", and although a lot of the researchers in particular don't like ME as a name, by using it (eg ME/CFS) it tends more to identify with the...

Kate Kelland @kkelland Award-winning Health and Science Correspondent for Reuters. Also mother of two and aspiring triathlete. Likes: hard work; asking questions; learning new things. yeah right.

Bunny therapy.........

something that many people (outside Australia) have noticed and that maybe advocates in Oz should try and remedy(?) @MyalgicE @Simone