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blog on BMJs website by Carl Henegan Carl Heneghan Editor in Chief BMJ EBM, Professor of EBM, University of Oxford https://blogs.bmj.com/bmjebmspotlight/2019/04/04/what-a-mesh/

The BMJ's open data campaign May 13 Fiona Godlee https://www.eventbrite.co.uk/e/the-bmjs-open-data-campaign-tickets-60191978829

Bizarrely I found this on MS twitter feed Using evidence to overcome fake news about healthcare a podcast of a shortish lecture by Professor Carl Heneghan http://podcasts.ox.ac.uk/using-evidence-overcome-fake-news-about-healthcare CEBM is The Centre for Evidence-Based Medicine develops...

Has anyone drawn up a basic checklist of the flaws in PACE that could be used/applied to other trials? eg lack of blinding, only subjective outcome measures, no objective outcome measures, using mean average rather than median (on recovery paper) etc

it seems to be coming from the angle that CFS/ME is a mental health issue that is stigmatised (like other mental health disorders). The fact that the genders are treated differently is almost irrelevent in this context.

changed his tune for this article somewhato_O https://www.gscene.com/news/me-taken-very-seriously/

That's why I don't understand why other researchers/scientists/other interested in scientific integrity have let it go on for so long. The most outspoken of those 'in the field' of psychology/psychoanalysis/psychiatry etc who criticise IAPT largely base their arguments on their own preferred...

I'm surprised that the makers of Buscopan (often prescribed for IBS/available otc for about £3.50 for 20) haven't launched a 'counter attack' on this research. From a cost-effective point of view for the NHS I would have thought that v.s c£750 for a course of CBT it would be a no brainer(?)

What's going on with the NICE "Suspected Neurological Conditions" guidelines? They produced a draft (2017) but on the project website it says it is 'In progress', and they have just updated the stakeholder list (??) https://www.nice.org.uk/guidance/indevelopment/gid-cgwave0800 (MEA and AfME are...

"Some studies are such whoppers that they overpower all other studies – no matter how many of them there are. I call them Hulks. Hulks might never be challenged, just because of their sheer size – no one will do another study like it again. Which is great when they provide a definitive answer...

I know there is a This is ME Campaign (Ireland) anyone know who are behind this one? Their website: https://thisismeuk.com/ under Take Action eta: their twitter ac https://twitter.com/ukthisisme

Robert Phair is a member here @RDP he discussed the metabolic trap on this thread https://www.s4me.info/threads/stanford-community-symposium-2018-phair-metabolic-traps-tryptophan-trap.6033/page-6#post-121063

They did an MRI and found nothing wrong with his spine, but a really bad infection in his brain. He was having seizures. They treated him with antibiotics. Eventually he was back to 'normal' (ie out of pain) although he continued to have to have medication for 'minor' seizures.

interesting note: " Article amended on 4 April 2019 Wording in this article has been changed to remove reference to people thinking themselves ill"; hmm so, what are they calling them instead? (anyone watch this episode of the Supervet? poor little Ralph) ) not all in his head; or is it?

2019 Valedictorian Eva Jazbec | Sierra Nevada College April 12, 2019 https://www.sierranevada.edu/2019-valedictorian-eva-jazbec/

earlier in this thread someone @Suffolkres (?) contacted Jerome Burne. apologies if this has already been posted, but he tweeted re the PACE trial and MS was not amused.

Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end re Lady Gaga being an ME/CFS sufferer (I thought she had Fibromyalgia(?)) @JaimeS But then looking through it again, in the middle of the article is...