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Hadn't heard of this and only had a quick scan through so far. After thinking of other things from reading comments here in reverse-chronological I then 'wondered': is this just about the situation that neither the name of CFS (or anything fatigue bla) nor ME (because medics use/see the 'there...

Yep they are saying ‘in people who can [edit: still] run a marathon competitively each week there is less MS so why aren’t these MS people just building themselves up to marathon running?’ Level of dumbness … and bigotry. sure the only difference between those lucky people with nothing wrong...

If they do - and I’d be worried about the ethics of it if there is risk of harm - I surely hope that at least gif MS (we seem to not matter to anyone) the measures must be proper randomised matched groups being followed up over long long time periods ie every year for 20yrs, with no ‘less than...

The typical how to tell a scientist from a thicko question: can you see that what you’ve tested and found is that the less ill people are able to do more or feel less tired. Or are you foolish enough to convince/delude yourself that factual obvious known doesn’t exist snd ‘just maybe faking it...

indeed - another issue with the fallacislly ‘sensible sounding’ (but flawed) pushing of ‘focus on treating symptoms’ (instead of understanding the overall and the pattern beneath which would involve you not treating patients with disdain and assuming what they sensibly describe is to be ignored...

Important stuff. I wish there weren't so many in the population who choose to be incapable of doing this and by being such xyz's do the worst harm imaginable(that I think you could do to anyone long term, it is so vile and immoral, not 'a debate' or 'a small thing' but fundamental and...

I'm going to get all boring and make it complicated but I think this tool for ME/CFS might be more interesting used in a different way than necessarily it is/just doing the 120s and taking an average. Following the obvious 'learning effect' ie where I'm rubbish geting my eye in for the first...

Was going to suggest rehydration tablets, glucose tablets or relevant sweets too but some have already got those. I used to have a bottle of oasis years ago but I think the sugar tax has affected these types of options, it has 10g of sugar for 250ml. I'm even sceptical a lot of the 'squashes'...

The manifesto justifying the 10-30% to write-off continues... I wonder what that number really is explained by and if it is 'in the mind/ideology/attitude ofthe neurologist' [perhaps truthfully 'post hoc justification' for sadly certain demographics or 'don't like the face of'], communication...

I've been thinking recently to myself about how the fundamental, underlying 'framing' of the condition is what needs to be nailed - ie people thinking 'back to' principles of 'chronic fatigue' as a basis has always been an unhelpful way of picturing it and certainly doesn't scale to either the...

I often have that sense of not wanting to publicise little known journals or articles that people wouldn't read if it weren't for the replies (ie the whole 'getting publiciy by causing ourage thing) vs the level of stupidity that can come from leavin unchallenged silly manifestos for too long...

Sensible predictions - can these be FOI'd too in order to see if that is the case? I guess the journal doesn't have anything along the lines of FOI to find out any behind the scenes stuff as it isn't public funded? ... Would probably then narrow down the list very convincingly (for any...

The recent study with the PHD student working with Bateman HOrne was one of the first where I thought they were beginning to be onto something, including time spent horizontal etc. They had really interesting learning points from their methods and results I think. Agreed that given the weirdness...

Of course the difficult thing with what BPS (and perhaps others) have turned their 'CBT and other variations' into is basically priming for the test, and so blinding - they have one thing right with their excuses - is only 'equal' if the control has the same amount of brainwashing/coercion to...

The whole ‘subject/school’ of behavioural ‘psychology’ is ONLY about the idea of making others do things differently by using various different levels of coercion. Punishment and reward and aversion like electric shocks being its basis. I’m surprised if isn’t outlawed really when you think...

We need some ‘business speak/sounds like/does what it says on the tin terms’ gir these habits and quality of ‘care’ that people pretend are acceptable ‘politely coercing’ or ‘sanitised coercion techniques’ would be one term i think is needed where the person is basically just engaging in...

Most importantly for anyone to be helpful they need to be informed better on the actual condition - which they refuse to be because they don't want to hear about the fact they only treat those without PEM because what they do damages others and refuse to hear about stories of failure of what...

I don't think it is the correct technique even in that context. ANd I certainly get the impression that any listening is shallow/skin-deep which makes it false question-asking which I find a disgusting and violating habit some have been encouraged in. For example there may be deep or good...

"it should not be a manipulative relationship." Isn't this precisely what this is, and is embedding scarily whilst telling those they are training in it that 'it isn't really manipulation'. This is what I worry about with the CBT embedding, it is just a technique in manipulation and...

This is an important impact to note which compounds and makes unrectifuable the error in attribution ie traps people meaning no one saying it’s wrong has a voice. so is worth underlining - but needs to be done so alongside noting that ‘and/when it’s the medics that are deluded not the patients’...