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My personal feeling is that this has been surreptitiously fostered by one of the most powerful forces there is - the political determination to cut financial costs, no matter what the human costs.

Which makes the massive assumption people can (and can be bothered to) distinguish genuine benefit cheats from people genuinely disabled but trying to live their lives nonetheless.

Yes @Gary Burgess, I agree this is a crucial prerequisite before discussing children with ME in public.

No.

Nor had I, but somehow it doesn't amaze me ... nor you I'm sure. I find it very hard to believe the motivation has much to do with the Hippocratic oath.

Essentially arguing for objectivity and accuracy, which are the very things SW always seems so averse to. The cynic in me says that knighthoods and honours are likely to be much more forthcoming when puppeteers can see money being saved, than would ever be the case from merely being ethical and...

In due course it would be good for PACE to be used as a clear example not just of appalling research, but also to exemplify the very real dangers of presuming as-yet-unexplained-by-medical-science symptoms to be psychological by default.

Not that we are trying to drown you in helpful information or anything @Gary Burgess ;):rolleyes::)

My wife's ME began after contracting a virus whilst recovering from a thyroid operation. n=1 obviously doesn't count for much, but definitely of interest.

Ah ... :(

Some crossed wires on my part I would think then, from this post: https://www.s4me.info/threads/gary-burgess-talking-me-cfs-bbc-radio-5-live-wed-1pm.2635/#post-48372 And importantly, for me there was not going to be a problem if there was a connection, just an opportunity for more debate.

Joined along with @Gary Burgess then. OK, would be good if we can get something positive from this for PwME.

Yep. A mind set so steeped in bad methodology, that he had no recognition of that fact. Sort of sounds familiar.

If this research is credible, then it sounds like it could be something well worth investigating further regarding ME.

Google doesn't seem to turn up anything.

Do we yet know if it is a genuine news story?

And still we have Jeremy Hunt running the show.

Nonetheless his high profile endorsement is a major plus. Pure political power may not come with his advocacy, but his presence alone could help bring others round.

Agreed. All that counts is effective communication; if it's ineffective it's a total waste of time and effort. I think of communication as a transmitter sending information to a receiver, and the receiver getting from the information what the transmitter intended. To me, communication is only...

I don't have access to the full article, and might not get the answer to my question even if I did. Can anyone tell me, without too much scientific complexity, how this study discriminated between sub-optimal effort due to physical effects, versus sub-optimal effort due to psychological...