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I don’t know anything about this. Does anyone have a link to more info?

I agree with @Mithriel but I think there is another aspect of harm which is often overlooked. It is indisputable that CBT and GET have caused many ME patients a great deal of distress, both directly and indirectly. If a treatment doesn’t work and makes many patients feel more stressed, anxious...

She also appeared on this edition of Inside health to talk about outcome switching with Carl Heneghan, Professor of Evidence Based Medicine at the University Oxford: https://www.bbc.co.uk/programmes/b0901fr4 I wrote to Heneghan after the programme to ask if he had looked into the PACE trial...

Ain’t that the truth! Very good at making stuff up. Not so good at scientific rigour. So difficult to talk about that any time he is interviewed you can pretty much guarantee that he will talk about it. Please do not misunderstand what he is saying here. He is definitely not suggesting that he...

Does anyone know if any of the rapid responses have been published in the lastest print edition of the BMJ?

I think the emphasis needs to be on holding back and not trying to do too much rather than trying to increase activity. We are all desperate to be more active and do not need any encouragement. An emphasis that many (most?) patients cannot increase activity would be good. The BACME stuff needs...

YES! I completely agree with this and have been saying it for a long time. Careers, egos and reputations must not be prioritised over patients’ best interests, whether we are talking about researchers, doctors, establishment figures or people working for charities. As a community we have such...

I thought I would use this opportunity to give Dr Phil Hammond another prod: By endorsing a charity which has signed the open letter to The Lancet he is half-way there. To have someone with such a high profile on side would be extremely helpful but I am not optimistic. He may have been...

I agree that: - The statement is a welcome step in the right direction - It is a mistake to endorse BACME I would add that it is possibly unwise to endorse any part of the NICE Guideline at this stage (even a part which is acceptable). In the past I have asked @Action for M.E. to acknowledge...

Another potential signatory to @dave30th Open Letter to The Lancet:

No I didn’t! Must have been someone else but thanks for alerting me. Just to add that I fully support @JohnTheJack’s letter, although, for the reasons @Dolphin suggested, I decided to submit my own.

Need to be careful here. The FTT found the allegation of threats from activists to be unsubstantiated. However, I think it may be accurate to suggest that PACE researchers have been subject to “hostility” (ie opposition). From the OED: Letters to the Editor of the Times should be sent to...

I used to assume that was the case. I used to assume that there must be some people being diagnosed with ME/CFS who had something very different to me which responded well to CBT/GET. How else could all these apparently intelligent people be so convinced of the effectiveness of their treatments...

Many thanks for posting this, Amy. I am sorry to hear about your negative experiences. I have not followed everything that you and your family have done but everything I have seen has been hugely positive, and I am enormously grateful for all your efforts and everything you have achieved. Your...

In my response, I was in two minds about whether to refer to specifically biomedical research or not. On the one hand I wanted to emphasise that the methodological problems with PACE are nothing to do with how ME is classified, but I also wanted to express my view that it is regrettable that...

Don’t tell anyone, but that’s me. Thanks.

Do you think the pluralisation of syndrome was a typo or deliberate? Is he suggesting there are different chronic fatigue syndromes? I’m not blocked on Twitter so I could ask him. I have also just submitted a rapid response to the BMJ, making similar points to the above posts.

I think this is a good idea. If you wrote a short blog asking people to write to their MPs and telling them how to contact you, I’m sure the charities (particularly #MEAction and MEA) would help to publicise it. If we manage to get a debate in the main chamber of the House of Commons this autumn...

@dave30th I wonder if this presents an opportunity for you to get the letter (or an abbreviated version) published in the Times as a Letter to the Editor?