I don't think you can see the Tweets of someone you've blocked. This suggests that MS is periodically unblocking people to read and reply to their Tweets and then blocking them again so that they can't read what he's written or reply. I'm starting to wonder if it may be a parody account.
I understand your cation but I disagree. Mike Godwin and I have had a long conversation on Twitter over several days/weeks, which led to him denouncing PACE and signing the open letter to The Lancet etc. In my earlier Tweets I made it clear to him that I have not made judgements about the...
Some while back in this thread we were discussing Godwin’s Law. I see Godwin wrote an article for the LA Times last week entitled “Godwin’s Law in the age of Trump”:
https://www.rstreet.org/2018/06/25/godwins-law-in-the-age-of-trump/
Meanwhile:
I would be so disappointed if you were not completely out of touch with popular culture. It would seriously undermine your credibility as an expert witness.
It might be safer to go for a non-descriptive name, like Ramsay’s Disease or perhaps some other proper name like Matthees – it would be a great to be able to honour Alem’s heroic acheivements in some way. Perhaps one day there will be award named after him. I hope so.
If Jonathan doesn’t like...
I sense I’m in a minority here but I’m not at all attached to the ME label. It’s much better than CFS, and I’m happy for it to be used, but equally I am not at all confident that everybody who meets the diagnostic criteria for ME (whichever critera is used) has the same illness. Whilst the CFS...
Wasn’t sure where to post this as it’s not an ME/CFS study, so please move if necessary. (Moderator note: thread has been moved.)
I’ve only read the abstract and skimmed the rest but this study looks so bad – an open label uncontrolled trial relying on self-reported subjective outcome measures...
Reminds me of one of my favourite songs:
Once upon a time you dressed so fine
You threw the bums a dime in your prime, didn't you?
People'd call, say, "Beware doll, you're bound to fall"
You thought they were all kiddin' you
You used to laugh about
Everybody that was hangin' out
Now you don't...
Sorry to be pedantic again but I’m sure we all appreciate the importance of accuracy when quoting these people. What he said was “nobody really liked them.” He used the past tense, referring to his time at Queen Square when he became interested in ME/CFS. He might argue that he was referring to...
In retrospect I think it may have been a mistake for me to tweet the above. As others have said, probably better to ignore – although I hope there may be some value in engaging Godwin again. I’m guessing that @dave30th has probably filled him in on some of this stuff but I think it’s important...
Yes, instead of being fobbed off with bull***t therapies that blame patients for being unwell and make many feel worse, I would much rather be told:
“Although you meet the diagnostic criteria for ME/CFS, we don’t yet understand the pathology of your condition, and there are no proven effective...
Agree.
Adam, will you email Harrison? I wrote to Mark Edwards (the one who is apparently no longer on the CMRC board) to ask him which effective CFS treatments he was referring to in the abstract of A unified Medhanism for Functional Neurological Symptoms...
The strange thing is that I think it was me who first wrote “GOTCHA!” in this thread, and yet I appear to be one of the few people who have not been blocked (see: https://www.s4me.info/threads/michael-sharpe-skewered-by-johnthejack-on-twitter.3464/page-79#post-83525).
I would not ordinarily use...
I think the quote you’re thinking of is “The bastards don’t want to get better.”
It was said by a supervisor in the FINE trial. You can find it on page 18 here:
https://niceguidelines.files.wordpress.com/2011/12/the-bastards-don_t-want-to-get-better.pdf
Full quote:
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