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I gather that the changes to the “factsheet” may have been in response to the Forward ME letter. But I will ask the CDC to clarify whether it has communicated with the SMC, as @Esther12 suggests above. (ETA discussion on Forward ME letter to SMC here...

The only reason I was uncertain was that I hadn’t appreciated your first point – that physicians can prescribe these things anyway. Given that, I think you’re absolutely right.

Yes, I may seek clarification from the CDC, now that I have the direct email address for its “CFS program”.

On 26 March I sent to following question to the CDC: 2 months the later (after 3 further requests for an answer) the CDC has responded: Details of the Roundtable report can be found here: https://www.cdc.gov/me-cfs/programs/meetings.html I note that the SMC has now revised its “factsheet”...

Or, indeed, that seeing a psychiatrist is the cause of mental health problems (which may well be true in some cases). I have mixed feeling about this. Do you think we should distinguish between treatments which have been trialled and shown to be ineffective (eg CBT, GET and Rituximab), and...

This is good news. Many thanks for your involvement Simon, and particularly for the influence you’ve had on Chris Ponting. The more I hear from him, the more confidence I have in him. I am reminded of Simon Wessely’s quote: “a litle more psychology and a litle less T cells swould be welcome.”...

As vice-chairman of the CMRC, what steps will you be taking to try to recruit other respected doctors and scientists, as well as charities and patients organisations, with an interest in biomedical ME research who have previously been unwilling to join the CMRC because of concerns about its...

The CMRC seems to have achieved very little since its inception beyond stoking controversy and alienating patients. As someone who appears to favour a patient-focussed, biomedical approach to ME research, why have you decided to try to do that through the CMRC rather than through any of the...

The PACE trial manuals no longer seem to be available from the QMUL website without a log in: https://www.qmul.ac.uk/wolfson/research-projects-a-z/current-projects/pace-trial/ Does anyone have copies of the manuals they can share here?

Letter from Chalder, Crawley, McCrone, Sharpe and Wessely to newsbeat. Copied to and shared by Tina Rodwell: http://tillymoments.blogspot.com/2018/05/bbc-should-check-their-information.html

Part two of my interview has now been published: https://www.thecanary.co/feature/2018/05/13/bob-dylans-blowin-in-the-wind-has-been-re-imagined-for-the-millions-missing-part-two/

This is part one of my interview with The Canary about my song and the #MillionsMissing campaign. Part two will be published tomorrow: https://www.thecanary.co/feature/2018/05/12/bob-dylans-blowin-in-the-wind-has-been-re-imagined-for-the-millions-missing-part-one/ Edit: And here is part two...

I think that is a little unfair, Trish. Let’s not forget that he co-signed a letter to the Independent in defence of Simon Wessely’s “pioneering research” in the field of ME/CFS, along with all the usual suspects...

Has anyone in the UK been prescribed sodium cromoglicate for MCAS? Please can you tell me exactly what you were prescribed and whether it was private or NHS prescription? Thank you. Please feel free to send a private message if preferred. Moderators - please move this if I've posted it in the...

I've now uploaded the video directly to Facebook. If you are on Facebook, and especially if you're an admin for a Facebook page, please share it: Thanks.

Yes, please share as widely as possible, on social media and beyond. We need the message to reach as many people as possible.

Some of you may recall that a few months ago I was asking for volunteers to sing in the chorus of an alternative version of Blowin' in the Wind that I had written (https://www.s4me.info/threads/protest-song-about-me-angel-on-the-water.1891/) Here it is the finished result: I am hoping that...

His name is Chris Afford: https://twitter.com/MorningCoffee75 I know him well. He's very knowledgeable and is doing a lot of good work, including organising and paying for a free screening of Unrest in Scarborough on 8 May: [Edited to add: If anyone knows of anyone who might be able to...

Dear Sam, I am writing to formally state that I do not have any conflicts of interest of financial or other nature regarding my communications with Professor Sharpe. Furthermore, I should like to take this opportunity to emphasise that despite my previous activities in this field I am in a...

And this is another thread: I will try to get him to answer some of the unanswered questions.