(That's why I'm here: I used to be able to read and interpret such data and synthesise ideas (ie from multiple sources and studies) to see the big picture and the new directions for investigation (including exactly what we need to prove and how). Now I often struggle with words and get tangled...
It's worth making a distinction between the researchers and the articles.
Research in a grad student setting is all about getting funding and, this is the important bit for us here, setting promising students on a path to a given field.
I'm sad that the headlines are impacting on Australian...
I think a useful exercise for all those embarking on an experiment is to list all your assumptions before you start. Then give that list to someone who is very good at experimental method and get them to check what you missed.
[Invariably you find something you need to fix in your experimental...
I am usually cold since ME/CFS. Extra cold when sicker. (ETA: for example I wear 5-6 wool layers, a hat and a wind proof on a bright summer day when out and about with people wearing t-shirts and shorts).
I had a course (ironically first aid) this year and we were testing thermometers and, after...
Large volumes of hot/warm drinks speed the gut. So I guess you could use that to advantage if that's the problem.
I find not eating helps slow things down but obviously not sustainable. And it doesn't fix the fever etc.
Rest is the only real 'solution' for me.
Seems far too precise to be 'the answer'. I guess it's just an attention grabber.
But I am curious as I've not yet read enough to have heard about calcium channels in this context.
I had hypercalcemia (blood) in my 30s which lead to discovery of a grossly enlarged parathyroid gland and a...
This might be too simple a question (in too many words), please, complier, feel free to skip or critically edit:
What would be your advice to someone who fits the criteria for mild/moderate ME/CFS, is still in the first couple years, but has not identified any significant abnormalities in...
Peer review is like the quote from Churchill on democracy: It has been said that democracy is the worst form of government except all the others that have been tried.
Peer review is a check and balance, one of many, not a panacea.
I agree, we need to value peer reviewers, we need to find ways...
As a student I took Bliss (developed by a local university at the time though I think it's been sold to a company now - not sure how budgeting might have affected its efficacy) to reduce sore throats. Worked really well. But funnily enough I still sometimes got a cold (achy, sniffly), just...
I like the story of how the spoons thing started.
I like how it relates a common broad experience of limitations that is recognised and shared in circles of people with non-ME/CFS conditions. I love being able to share something with people who have other life limiting conditions which are more...
most important: stop caring.
Most people like you better for not showing them up. So long as you don't smell or scare small children, a smile is the most attractive accessory. Save your energy for that.
(Sounds trite but is true)
I've never "dried" my hair, never have mirrors in the house (a window with light behind you suffices to check you haven't put your undies on your head or something), and never have clothes that need ironing (unless hanging them up or laying them flat suffices ... or the old trick with silk...
I have a lot of trouble with my teeth, especially since ME/CFS (ETA: tho I can't say that this means anything for any other PwME).
I went to three separate new dentists (first to be closer to where I live, second because I was still in pain and we hadn't completed her whole plan but I was away...
I'm very interested in this auto inflammatory lead. Please continue.
(On a purely personal note: I'd especially like to know about any blood tests that might remain at variance from the norm even when not in the middle of a crash. Would be a dream to have something that easy to check.)
I'm at my first year now.
When I try to list my symptoms I always forget the most important one(s) and go on and on about any minor niggles. Sometimes, (ETA: especially on 'good' days,) I feel like I must be a hypochondriac. Surely, if you can't pin down your major symptoms?!?
(edit: deleted...
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