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  1. Subtropical Island

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    (That's why I'm here: I used to be able to read and interpret such data and synthesise ideas (ie from multiple sources and studies) to see the big picture and the new directions for investigation (including exactly what we need to prove and how). Now I often struggle with words and get tangled...
  2. Subtropical Island

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    It's worth making a distinction between the researchers and the articles. Research in a grad student setting is all about getting funding and, this is the important bit for us here, setting promising students on a path to a given field. I'm sad that the headlines are impacting on Australian...
  3. Subtropical Island

    Does anybody know this?

    Let me know if you get any info on this when you have it checked?
  4. Subtropical Island

    Greater specificity of activity memories in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (2017) Maryanne Martin

    I think a useful exercise for all those embarking on an experiment is to list all your assumptions before you start. Then give that list to someone who is very good at experimental method and get them to check what you missed. [Invariably you find something you need to fix in your experimental...
  5. Subtropical Island

    Does anyone else get IBS as part of a crash?

    I am usually cold since ME/CFS. Extra cold when sicker. (ETA: for example I wear 5-6 wool layers, a hat and a wind proof on a bright summer day when out and about with people wearing t-shirts and shorts). I had a course (ironically first aid) this year and we were testing thermometers and, after...
  6. Subtropical Island

    Does anyone else get IBS as part of a crash?

    Large volumes of hot/warm drinks speed the gut. So I guess you could use that to advantage if that's the problem. I find not eating helps slow things down but obviously not sustainable. And it doesn't fix the fever etc. Rest is the only real 'solution' for me.
  7. Subtropical Island

    Does anyone else get IBS as part of a crash?

    Yes but diarrhoea more often than constipation. ETA Not just mild but full blown, gastroenteritis symptoms
  8. Subtropical Island

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    Seems far too precise to be 'the answer'. I guess it's just an attention grabber. But I am curious as I've not yet read enough to have heard about calcium channels in this context. I had hypercalcemia (blood) in my 30s which lead to discovery of a grossly enlarged parathyroid gland and a...
  9. Subtropical Island

    Researcher Interactions Science for ME Q&A with Dr Montoya, 16th January 2018 question collection thread

    This might be too simple a question (in too many words), please, complier, feel free to skip or critically edit: What would be your advice to someone who fits the criteria for mild/moderate ME/CFS, is still in the first couple years, but has not identified any significant abnormalities in...
  10. Subtropical Island

    Article: Nature, "Peer reviewers need more nurturing"

    Peer review is like the quote from Churchill on democracy: It has been said that democracy is the worst form of government except all the others that have been tried. Peer review is a check and balance, one of many, not a panacea. I agree, we need to value peer reviewers, we need to find ways...
  11. Subtropical Island

    Microbiome testing reports discussion

    As a student I took Bliss (developed by a local university at the time though I think it's been sold to a company now - not sure how budgeting might have affected its efficacy) to reduce sore throats. Worked really well. But funnily enough I still sometimes got a cold (achy, sniffly), just...
  12. Subtropical Island

    Spoon theory

    I like the story of how the spoons thing started. I like how it relates a common broad experience of limitations that is recognised and shared in circles of people with non-ME/CFS conditions. I love being able to share something with people who have other life limiting conditions which are more...
  13. Subtropical Island

    Unofficial blog looking at OMF's Severely Ill Big Data study so far

    (Um, I may be misunderstanding your question but) isn't the blue/cyan/teal colour on figure 5 the healthy controls? is that what you're asking?
  14. Subtropical Island

    Keeping Up Appearances - How to look good while feeling ill

    most important: stop caring. Most people like you better for not showing them up. So long as you don't smell or scare small children, a smile is the most attractive accessory. Save your energy for that. (Sounds trite but is true)
  15. Subtropical Island

    Keeping Up Appearances - How to look good while feeling ill

    I've never "dried" my hair, never have mirrors in the house (a window with light behind you suffices to check you haven't put your undies on your head or something), and never have clothes that need ironing (unless hanging them up or laying them flat suffices ... or the old trick with silk...
  16. Subtropical Island

    Anyone get root canal (either before or after ME onset)?

    I have a lot of trouble with my teeth, especially since ME/CFS (ETA: tho I can't say that this means anything for any other PwME). I went to three separate new dentists (first to be closer to where I live, second because I was still in pain and we hadn't completed her whole plan but I was away...
  17. Subtropical Island

    Is this the mechanism underlying PEM?

    I'm very interested in this auto inflammatory lead. Please continue. (On a purely personal note: I'd especially like to know about any blood tests that might remain at variance from the norm even when not in the middle of a crash. Would be a dream to have something that easy to check.)
  18. Subtropical Island

    Are there symptoms you had in the early stages of ME that you no longer get?

    I'm at my first year now. When I try to list my symptoms I always forget the most important one(s) and go on and on about any minor niggles. Sometimes, (ETA: especially on 'good' days,) I feel like I must be a hypochondriac. Surely, if you can't pin down your major symptoms?!? (edit: deleted...
  19. Subtropical Island

    Article: Why I injected myself with an untested gene therapy (BBC news about biohacking)

    I'm looking for the M.E. Moments thread on PR, or here, and can't find it anywhere. Is it my brain or is it gone? Miss it.
  20. Subtropical Island

    Anyone available for proofreading in English?

    I take it you have the help you need. Let me know if more is needed?
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