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Lipkin is the main author...

Is this the sort of hypothesis that the DecodeME GWAS study could rule in or out?

Glad you were feeling so much better, @unicorn7! Has your improvement maintained?

I had an NHS test some years ago - you have to drink some kind of sugar solution and then periodically blow into a tube to register the content of your exhaled gases.

Hi Hummingbird - I didn't buy one in the end, because I couldn't find one at a reasonable size or price to cope with the size of my flat (I live in a lounge/kitchen which, combined, seemed to be more than a purifier could cope with - plus, I was concerned about the constant noise.

Is there enough of a description of this ANS rehab method for anyone to try to replicate it for themselves?

I particularly liked this:

I don't know. In practice, this is the kind of thing that I might be tempted to try, because I could have died of old age before we know more about the physiology.

Thanks for posting, @Kalliope. I'm only partway through the transcript of that video and he's described a lot a of standard dysautonomia treatment but also something that's new to me: So no RCT there or much discussion of the benefits except to say it was 'really helpful'. I don't know if I've...

Wasn't there some suggestion a very few years back that PwME have some issue with fat metabolism? From OMF?

Well done, @dave30th - excellent article.

The same guy says that not everyone can absorb magnesium via the gut. Certainly I've tried Mg supplement with no benefit but have had big benefits (on migraines) after methods involving absorbing it through the skin.

Thanks, Jo. Initially, I got that info from a book called (optimistically) The End of Migraines by Alexander Mauskop, who is a professor of clinical neurology at SUNY. He's written about magnesium for migraine in a couple of articles on PubMed, such as this one. In the book, he says: Testing...

I've read that the normal NHS blood test for magnesium isn't much use because if you have low magnesium, your body will keep your blood levels up by taking magnesium from your bones. Are there any useful tests that can be done in the UK that NHS doctors would and should take seriously?

This sounds like a completely new approach. Very small N, obviously, but this sounds (in my ignorance) as though it could be exciting. What do you think, @Jonathan Edwards and @Simon M?

If it had only just come on, I'd have been dialling 999 (I did, when it happened to me, and an ambulance was sent immediately, because of the suspicion of stroke).

I had Bell's Palsy and it didn't just happen when I was tired, and it didn't affect my brain. I don't think those things are characteristic of it. I'd dial 111 and get triaged.

I would get a new symptom like this checked out immediately. Why not dial 111?

Very surprised they need someone full-time for that position!

I think the issue is that the vast majority of people won't read a specific story in a newspaper - they'll glance at pictures and headlines and only read the stories that catch their interest. So the slumped jogger with an ME headline is overwhelmingly going to give most readers the impression...