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https://journals.sagepub.com/doi/full/10.1177/27536351241231351 Open access Editorial First published online February 9, 2024 A New Professional Society for Post-COVID Condition and Other Post-Viral Conditions Manoj Sivan M.Sivan@leeds.ac.uk and Melissa Heightman...

Merged thread Now published Free fulltext: https://neurologyopen.bmj.com/content/6/1/e000529 Mixed methods system for the assessment of post-exertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: an exploratory study Barbara Stussman1, Brice Calco1, Gina Norato1...

Preprint Background A central feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is post exertional malaise (PEM), which is an acute worsening of symptoms after a physical, emotional and/or mental exertion. PEM is also a feature of Long COVID. Dynamic measures of PEM have...

NINDS is seeking feedback on ME/CFS Research Roadmap Priorities-- new email option NIH MECFS Information List <NIHMECFSInformationList@mail.nih.gov> to NIH-MECFS_INFORMATION We are writing to offer an email option to provide input and feedback on the ME/CFS Research Roadmap research...

Recruitment is CLOSED

Video is now private for some reason.

Free fulltext: https://www.sciencedirect.com/science/article/pii/S073839912400065X Patient Education and Counseling Available online 7 February 2024, 108198 Stigmatisation in medical encounters for persistent physical symptoms/functional disorders: scoping review and thematic synthesis Hõbe...

[CFS is referred but I don't think they say how they define it] https://www.researchsquare.com/article/rs-3870058/v1 Post-viral symptoms and conditions are more frequent in COVID-19 than influenza, but not more persistent https://doi.org/10.21203/rs.3.rs-3870058/v1 This work is licensed...

Free fulltext: https://www.sciencedirect.com/science/article/pii/S1077722924000221 Cognitive and Behavioral Practice Available online 8 February 2024 Individual Video-Based Case Formulation for Participants With Persistent Physical Symptoms Associated With Indoor Environment or Chronic Fatigue...

https://journals.lww.com/ahm/abstract/9900/integrated_causal_inference_modeling_uncovers.72.aspx Original Articles Integrated Causal Inference Modeling Uncovers Novel Causal Factors and Potential Therapeutic Targets of Qingjin Yiqi Granules for Chronic Fatigue Syndrome Li, Junrong1,#; Zhai...

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MEA research update summarises this study: https://meassociation.org.uk/2024/02/me-cfs-research-published-30-january-5-february-2024/

Tuesday, February 20. Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-65/ 1 PM MST/3 PM ET/8 PM in Great Britain & Ireland Find the time in your time zone here...

A number of speakers have now been announced

https://www.amjmed.com/article/S0002-9343(24)00057-3/fulltext CLINICAL RESEARCH STUDY|ARTICLES IN PRESS Clinical and Laboratory Characteristics of Fatigue-dominant Long-COVID subjects: A Cross-Sectional Study Jin-Seok Lee, PhD Yujin Choi, MD Jin-Yong Joung, MD, PhD Chang-Gue Son, MD, PhD...

Another piece by the same author: The Long, Heavy Black. On living hells and waking nightmares. https://www.samuelkronen.com/p/the-long-heavy-black I haven't read but have seen some praise on Twitter e.g.

Not on the novel as far as I know but I just came across the following podcast from last year where among other things according to this twitter post Stuart discusses the illness I also saw a Tumblr post for the podcast with the ME/CFS hashtag used...

Press release for this Canadian study [Metabolomic and immune alterations in #longCOVID patients with #ChronicFatigueSyndrome]: https://www.ualberta.ca/folio/2024/02/sickest-long-covid-patients-face-symptoms-nearly-identical-to-chronic-fatigue-syndrome.html “We do not actually believe that...