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Just in case anyone is wondering about the context there, 'Alison's head' is a PWME and there's a typo in her tweet - she meant, I think, to say, tongue in cheek, 'Thank you Brian. I’m sorry you’re being lumped in with us lowly bottom feeding sick activists!'

I'm very pleased to see this, because protests by patients are one thing (and patients with a presumed somatoform disorder chanting, 'We're not mad!' are in a cleft stick) but questions put by professionals at the event are quite another. I'd love to know what was said, and how Per Fink...

It's weird how 'activist' and 'lobbyist' are being used as pejorative terms in this debate when there's nothing wrong with being either. An activist is a person who campaigns to bring about political or social change. A lobbyist is a person who takes part in an organized attempt to influence...

On my way to bed and will have to save until tomorrow what looks like a very good piece by @JaimeS: https://www.meaction.net/2018/10/19/join-the-fight-in-new-york/

#MEAction's press release, which includes some interesting stuff I didn't know: https://www.meaction.net/2018/10/19/40423/?mc_cid=4e593df715&mc_eid=6ca23f694f

It's shocking that Clare Gerada, a recent chairperson of the Council of the Royal College of General Practitioners, is, in 2018, saying that doctors need to be seen as infallible. Patients certainly don't need this. We're not children and we're not stupid. We know full well that nobody is...

Yes - it's one thing to do this to patients but quite another to do it to another medical institution - and such an influential one. I really think that the core defenders of this review have been extremely stupid.

Excellent letter. Big thanks to Dr Racaniello.

Note: Current status: A month has passed since we submitted the bid. We hope the CDC listens to reason and issues this contract to #MEAction and the New York State Department of Health AIDS Institute. We will keep you updated on our next steps and our next actions. We will continue to fight for...

Thank you, @dave30th - clear summary of a sorry situation.

Cort has a blog about Phair's hypothesis today. He explains Phair's search strategy for a mutation (I don't think I've seen it explained this way previously): With his beginner’s mind, though, those 70 or so outbreaks caught Phair’s eye [...] The fact that so many people became so ill so...

From Google Translate (broken up for ease of reading): The Disappeared 19 minutes ago Cochrane withdraws report on graded training therapy for ME. It is a temporary withdrawal because they believe there is reason to make a more thorough assessment of the report based on critical input...

No I didn't, I'm not on Twitter. :) Just on Witter.

Clare Gerada: "As long as you take full accountability when things go wrong." Just like the PACE crew have, obviously.

Worth contacting them, @dave30th?

If the PACE/MAGENTA etc. debacle has shown us anything, it's that any number of professors in the UK can come out with all sorts of utter rubbish without professional consequence. Their universities don't care and their colleagues will back them blindly against patients.

Anyway, despite the irritatingly biased article and ludicrous comments from Blakemore, this is great news. Huge thanks to all who have worked on tackling this poor-quality review - including, of course, our Bob.

Yes indeed, such as: On treatments, evidence from at least 10 published studies — including the 2017 Cochrane Review — shows psychological approaches such as graded exercise and cognitive behavioral therapy can help some CFS/ME patients improve. Yet critics say this amounts to a...

That's very odd. If everyone who has a view on CBT and GET is seen as having a conflict of interest, none of those BPS proponents should have made it through onto the committee.