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@Robert 1973 - I read in another place that the deadline for both signing the petition and sending letters is 25 March. Is it worth adding that to the thread title, do you think? So far, 6,500 signatures on the petition and 150 complaints to the GMC, apparently.

Congratulations to the authors! :) The BBC piece is disappointing - they've swallowed the SMC line whole and are regurgitating it. I can't read the Times piece because it's paywalled but it certainly sounds more accurate, given its headline...

Good point. Fibsheet, maybe.

Maybe not - I was posting more for awareness. I think it will be interesting to see if their content changes as the PACE empire continues to collapse.

@Cheshire - would it be good to maybe change your title to 'SMC factsheet for journalists: 'CFS/ME - the illness and the controversy' so people realise what it is? This factsheet looks pretty desperate to me.

It's 32 pages! What in particular is horrifying? :)

Glad to see our @Simon M launching his new blog! :thumbup: If I want to know what to make of the latest big science claim in ME/CFS research, I always look to Simon and, incredibly for a non-bioscientist such as myself, can understand what he says because he writes so clearly. I also like that...

Perhaps someone can tweet a link to your post. :) Such as @Tom Kindlon?

BACME do look pretty weird from their website (so weird that I've started a thread on it). But I think it's important to distinguish between what we know and what is supposition. If we want to tackle dodgy organisations, we need solid facts. I don't doubt that some people within BACME have...

BACME's (British Association for CFS/ME) website has been down for ages, I'd thought, but now it's up again, and it's quite strange. Here it is: https://www.bacme.info/ The first weirdness is its huge, colourful main-page banner of lively, fully able people and mostly children jumping and...

Not yet, that I'm aware of. It might have been an item to consider left over before they underwent their big change, and they may think differently about it now. I wasn't aware that the SMC had anything to to with BACME. Where did you see that?

They're not contemplating a merger, are they? I thought it was just that they were considering whether to hold a joint conference.

Read the rest at: http://occupyme.net/2018/03/20/2017-nih-spending-on-mecfs-research/ I haven't read it yet but Jennie is always good value. :)

How can this be done? I.e. what can we and/or our charities and/or our researchers do?

I really do hope that there's something we can do long before that, to get these guidelines overturned. That's a lot of patients who are going to be treated with GET in the meantime, to the detriment of their health. I'm really worried about them.

:banghead: How many people are on the commission, Nattie? I'm wondering how big the majority was.

Excellent! But their tagline seems to be in error: Chronic fatigue still is a real disease I think they must have meant to put 'syndrome' where 'still' is.

Looks as though it might be of interest to you, @Ryan31337...

Action for ME recently joined the forums. On another thread, Clare from Action for ME (AfME) wrote: Thanks for being willing to look at questions, Clare. A key one for a lot of people is AfME's current attitude to the PACE trial. AfME signed the joint open letter asking QMUL to release the...

The timeframe is longer on this than I expected. In his first blog about this, Cort said, 'The trial is expected to take place in the first quarter of this year at a well-known ME/CFS expert’s clinic.' We've just had the first quarter so I thought it would be pretty much finished by now. But...