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Sorry, Binkie - I don't have links to hand.

These newsletters have been known about for a long time and have been written about, by David Tuller, for example, and Wilshire and colleagues. They were written by the PACE team and sent to patients in the study. It's no secret.

There used to be copies of all the newsletters sent throughout the trial online, posted by the investigators. They seem to have moved, though - the links to the newsletters from this ME-pedia page on PACE are dead.

I use Dragon Naturally Speaking with my PC sometimes and it's pretty good. I followed the advice in Scott Baker's book about 'Training Your Dragon' and I think that probably helped it to be more accurate straight out of the box. It might be worth considering getting a cheap/secondhand PC just...

This is interesting (look away if you don't want to read the punchline to the article!): “We’ve cured cancer and autoimmune disease in mice many times over,” Davis likes to say. And he says a colleague of his often starts his talks with the salutation: “For the mice in the audience, I have...

Thank you, @dave30th and @Brian Hughes! :thumbup::balloons:

Oh! I see something here: https://business.facebook.com/pg/Hope4MEFibro/posts/ And without being logged into Facebook. :)

Are people at this link? Do you have to click on something once you get there?

It seems you have to be logged into Facebook. I hope it will go up on YouTube later. :)

If they had indeed blacklisted any researcher who attended the CMRC I'd hope that they're revisiting that policy. Chris Ponting attended the IiME conference this year so it's clearly not a blanket policy at this point in time. Things change, and there appears to have been a fairly thorough...

I don't think they need to use any connections, TBH - it's easy enough just to email someone and invite them to come. It strikes me that the Stanford Symposium was almost all American researchers and the CMRC conference was almost all Brits. Both of those conferences seem to be showcases for...

I'm very impressed with how hard you've all worked to try to make progress towards a biomed-led service in your local NHS. :thumbup:

Here's the agenda: https://www.s4me.info/threads/cfs-research-center-at-stanford-second-annual-community-symposium-sept-29-2018.3255/page-3#post-108186 Here's the livestream, @Jonathan Edwards...

The benchmark is the 'Can you see me now?' naked woman from the London #MillionsMissing protest...

At one point I thought Linda Tannenbaum said there were over 3,000 people watching the livestreaming - I guess it went up... I was listening for people mentioning publications but didn't catch anything.

Good to see this attracting such a lot of interest:

Thanks very much for this account, @dave30th - very much appreciated by those of us too sick to attend the conference. Very good to hear the direction that the CMRC is moving in. @Action for M.E. - any update on when we can expect to see the conference presentations on YouTube, please?

It was being livestreamed but they're going to put it up on YouTube. It took them about seven weeks to post last year's material so it might be a bit of a wait.

Just been watching Jarred Younger's talk at the Stanford Symposium, presenting data showing that PWME have brains that are 1 degree F higher on average than healthy controls - enough to make us feel ill, he says. Did he say something in the panel discussion about it being worth trying to cool...

This thread has been split from the main Stanford Community Symposium thread. Is it just me or was the Jarred Younger stuff really exciting? Does that strike you as the sort of thing that should be getting replicated as a priority, @Jonathan Edwards? (Not sure if you're watching but he was...