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  1. Sasha

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    This stuff is all waaaaaaay over my head... o_O Are you watching, @Jonathan Edwards? Anything look interesting to you?
  2. Sasha

    Ketogenic diet

    Dr Oystein Fluge mentioned at today's Stanford Symposium some patients benefiting from keto diet but that it's only anecdotal so far:
  3. Sasha

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    @JaimeS, I don't know if you'll be able to ask questions from the floor (or maybe prompt people before they speak!) but we're all keen to know what publications are in press...
  4. Sasha

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Looks good - lots of hot topics. I wonder if they'll take questions via the livestream? Do you know, @JaimeS? It would be good to get a bit of to-and-fro about the more controversial aspects. Edit: And to ask about what publications are in the pipeline, as @Andy mentioned on another thread.
  5. Sasha

    Concerns about Cochrane

    I don't - I take three aspirin (English born and bred). :)
  6. Sasha

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    @JaimeS just tweeted that there are, confusingly, two hashtags on the go - here's a search on the other one: https://twitter.com/hashtag/MECFS2018?src=hash
  7. Sasha

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    Here's the hashtag search again - just click on 'Latest' and you see the latest tweets. You don't have to be registered with Twitter to see all this stuff. :) https://twitter.com/hashtag/mecfs18?f=tweets&vertical=default&src=hash
  8. Sasha

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    Today's session starting up:
  9. Sasha

    A brightening future: the state of ME/CFS research (Discuss! Simon M blog)

    Very good, @Simon M! Things are unrecognisable from ten years ago when the XMRV saga seemed to kick everything off. But I think that XMRV showed that with an interesting lead, all sorts of people will get interested fast and that things could move forward very quickly with the right finding...
  10. Sasha

    Bristol - New Network - Prof Munafo

    Nice job, Graham - good that he's thinking.
  11. Sasha

    Bristol - New Network - Prof Munafo

    I'd just modify the bit about the exceptions to make it clear that you're talking about the UK (because, as you've already told him, quite a few researchers outside the UK have signed the Lancet open letter. Dear Prof. Munafò Thank you for your prompt reply, and thank you for reading our...
  12. Sasha

    Concerns about Cochrane

    This is exactly what I thought about when I read 'inappropriate' and exactly why they need to either be specific or say nothing. By default, they've accused him of something terrible and are dragging his reputation through the mud (unless, as I say, I've simply missed where they said something...
  13. Sasha

    Concerns about Cochrane

    If Cochrane are accusing him of 'disruptive and inappropriate behaviours' without specifying what those things are then I think it's far worse than laughable - it's an open-ended smear, allowing people to think the very worst of Gotzche. Making arguments about privacy is no good when someone is...
  14. Sasha

    Concerns about Cochrane

    I don't think I've seen any specification of what Prof G's 'disruptive and inappropriate behaviours' actually were. Do we know?
  15. Sasha

    Bristol - New Network - Prof Munafo

    I wasn't aiming for tact, just brevity! I'm all for speaking truth to power. No point speaking anything else. But I think it's important to focus on what Graham wants him to do (given that Prof M is unlikely to change his mind and come out against PACE himself). I think the best we can hope for...
  16. Sasha

    Bristol - New Network - Prof Munafo

    You know me, @Graham - I'd shorten it and focus it tightly on your 'ask' (and get your ask in early as well as at the punchline so he doesn't just think you're writing to moan at him, which might mean he doesn't read the rest): Dear Prof. Munafò Thank you for your prompt reply, and thank you...
  17. Sasha

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Are any forum members going to this symposium?
  18. Sasha

    Bristol - New Network - Prof Munafo

    You could do that, and it's a good point, but I doubt it will persuade him to take action. But how about asking him for advice about that? Given that we need people to stand up and be counted on PACE, how would he advise us to get them to do that? If he were a patient with this condition and...
  19. Sasha

    Bristol - New Network - Prof Munafo

    Nice reply, understandable under the circs, but I think you've contributed to the general consciousness-raising around this, which will be especially useful in Bristol University. Interesting that he's come across the issues with PACE on Twitter. I always wonder how much of an echo-chamber...
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