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  1. NelliePledge

    Boy said to have 'CFS/ME' interviewed on BBC's 'The One Show' 26/02/2019

    Given Louise Minchins profile is all about doing triathlon it’s unlikely even if she reads responses to her tweets that she will ‘get’ that exercise harms in a couple of sentences. Maybe if Tymes Trust, parents group wrote to her and asked for a meeting or invited her to meet someone who is...
  2. NelliePledge

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    Has Chalder ever done any research that isn’t capable of being unpicked so easily? In OFSTED or CQC assessment terms her stuff must be at the unacceptable end of the scale. Or maybe there is a special Chalder Research Quality scale where as long as your name is Chalder your research is...
  3. NelliePledge

    An Introduction To ME By Dr Hng

    You have to join the group at this link is there any public information
  4. NelliePledge

    Investigating causality in the association between vitamin D status and self-reported tiredness, 2019, Havdahl et al

    everyone gets fatigue - gosh what a surprise :banghead::banghead:
  5. NelliePledge

    Three identical Strangers triplets adopted separately for psych research

    Good god @Peter Trewhitt how disgusting shows an utter lack of empathy and understanding of the group of people they were dealing with, even if you set aside that they wanted to treat vulnerable people like rats did they have no understanding of physical risks of falls due to the impact of...
  6. NelliePledge

    Three identical Strangers triplets adopted separately for psych research

    just watching a documentary about these folks a set of triplets and some twins separately adopted in the 60s the adoptive parents weren’t told they had siblings. all so they could be studied by psychiatrists. Possibly because their birth mothers had mental health issues. Disgusting...
  7. NelliePledge

    Profile of Nathan Douglas athlete who has 'recovered from CFS'

    So with the one show thing second recovery story this week Fishy
  8. NelliePledge

    Prescribing for patients with chronic fatigue syndrome, by Bhatti & Bhatti, Feb 2019

    So presumably written by the year 5 medical student at Prague for some kind of assignment and they possibly thought having the (inadequate)GP on it would help with the gravitas :rofl: Do medics really get any credit for regurgitating material like this. @Russell Fleming maybe one to draw to...
  9. NelliePledge

    Prescribing for patients with chronic fatigue syndrome, by Bhatti & Bhatti, Feb 2019

    Yes the article would have done better as one sentence - get a copy of the MEAssociation Purple Book I notice they were fuzzy about prescribing Tricyclics on top of SSRIs which is unhelpful. The MEA wording on this is much stronger in showing it is a bad idea.
  10. NelliePledge

    ME/CFS services in the United Kingdom

    Don’t want to be negative about your idea @Suffolkres as I know you’re battling to come up with something workable that keeps people away from GET. But my immediate thoughts about basing it on rheumatology are: Fibro is also under the MUS umbrella so it may not in practice make any difference...
  11. NelliePledge

    Gary Burgess - The ME show, and updates about Gary's health.

    Maybe a case of being effective at using the BPS buzzwords as a veneer but doing something different in practice. After all we know from BPS that you can use terminology to mean whatever you want. And if you want to get NHS patients referred you still have to be perceived as on side.
  12. NelliePledge

    Mind, body and ME

    Have to confess I was very relieved by the digression onto biscuits with or without chocolate. My brain was not taking in any of the proper discussion :ill:
  13. NelliePledge

    NY Times: Five Things I Wish I’d Known Before My Chronic Illness [principally about IBD]

    @shak8 yes I realise other conditions can be tough even ones where there are effective medications there are folks Who still have a very rough time of it when they have a more severe version of their condition less able to be managed. But for example I know someone who has gout and had terrible...
  14. NelliePledge

    'In pain all the time': will there ever be a cure for chronic, life-changing UTIs?

    Good article IC is yet another condition that comes under MUS isn’t it. I don’t get painful UTIs nowadays but I’ve had spells in the past of recurring UTIs and at some point it became pointless going to GP any more as the urine test always came back no infection but felt just the same as the...
  15. NelliePledge

    Trial By Error: Professor Sharpe’s Retraction Requests

    I suspect the only blowing at that event will be Wessely and Gerada both blowing their own trumpets seeing as he is doing the opening and she is leading one of the sessions :sick:
  16. NelliePledge

    NY Times: Five Things I Wish I’d Known Before My Chronic Illness [principally about IBD]

    Would be great to have a well controlled chronic condition- not that I would wish her illness on myself or anyone.
  17. NelliePledge

    Trial By Error: Professor Sharpe’s Retraction Requests

    Charity commission isn’t known for being hot on compliance activity and given that for example private education is full of businesses legally using charity organisational structure to gain tax benefits I’d say the charitable sector isn’t exactly the ethical role model most people assume.
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