Search results

My experience from whenever ME finds its way onto subreddits with physicians present is that Cochrane is held in higher status that the NIH, CDC and NAM combined. I don't know if it's just an exception they do for us by cherry-picking a source that agrees with their opinions or a general...

Same with all of this. Prior knowledge and things that are familiar with prior knowledge work OK when there is sufficient relevant information to relate to it. Learning is just plain herculean. With time and a lot of repetition, I can do some of it, but we're talking about a 10-100x reduction in...

We redid our calculations and we can now pronounce that the end of the world will not be happening last week, as we had inaccurately predicted, but will instead be occur in exactly 28 days, 6 hours, 42 minutes, and 12 seconds with near certainty.

I have not seen any of this and even myself as a vocal critic of their psychosocial BS do not support banning it in any way, simply acknowledging that it has no evidence basis and should not be a recommendation. People should be free to try anything they want, even woo treatment for treatable...

Absolutely. You may use my name if it's better.

I checked the link for the James Lind alliance thing and its protocol is dated in 2015 with no updates. So death by committee, in addition to being only closely related in that we don't know if there is any link between the two conditions anyway. In 2015 I wrote the health minister of Quebec...

I recently wrote the health minister of Canada (August 8), copying my provincial and federal MPs, as well as the provincial health minister of Quebec about our situation. I wrote and received a reply in French and don't have the energy to translate it in full along with my letter, but I attached...

Hopefully this will Streisand effect the issue. It generally does. *grabs popcorn*

I don't remember the source, but a POTS study did tilt table tests on mice. So someone built a tiny weeny little mouse-sized tilt table and I just can't get out of my head how adorable that is. LOL @MEMarge thinking the same :)

This would look bad enough if it weren't for the current context of clinical psychology facing a massive crisis of accuracy and credibility. Given that this is the context in which this is happening, it's just irresponsible. It's also really weird in the context of Afflicted and the flack...

"Muh Cochrane" is basically all I see in the wild. Whenever medical professionals are involved in discussion over this disease, this is the source I see the most, seemingly with a reputation above the NIH, NAM and CDC combined. Given that, they are betting right to always point to them. It's...

Impossible to say who, but it's hard to believe that this was a legitimate journalistic effort. If so, that's almost worse considering how poorly researched and biased the outcome is. Hanlon's razor only goes so far, oftentimes it's a healthy mix of both incompetence and malice. Wild...

When this whole IAPT project is understood as a cost-cutting measure by providing cheap alternative to medical care, it is definitely a good outcome according to them and everything they say and do starts to make sense. There ain't no cheaper patients for a health care system than those who...

WTH is meant by psychological abilities? Mind-reading? Telekinesis? They've fully gone off the deep end, have they? Committing fully to pseudoscientific nonsense as a poor disguise for a modest proposal of "what if we just left the sick to their own devices?"

They totally got MBAs involved in this, right? This is basically the medical equivalent of a corporate word salad. I can't tell their mumbo jumbo apart from sarcastic nonsense: This clinic will objectively redefine one-to-one paradigms, efficiently myocardinate fully tested architectures that...

Rube Goldberg's razor: trying every convoluted explanation possible in order to avoid acknowledging that the simplest explanation is most likely correct. Is it ghosts? Cold mothers? Repressed memories of intense guerilla warfare? Woodland fairies? Overachieving personalities? Zeus...

Because if there's one thing overachievers are known for, it's definitely failing to achieve much because they end up believing themselves sick. Galactic brain-sized intellect right there.

It will stop once all the underlying conditions are finally understood. In the past few years they have lost quite a lot of victims in POTS, EDS, MACS, dysautonomia and others. That still leaves millions, with us likely making up the largest such group along with FM. But they will eventually...

Nearly without fail, physicians quote Cochrane as the source for their support of CBT/GET. It seems to be the gold standard for evidence-based medicine. The fact that Cochrane miscategorized ME in mental health and completely ignores the body of evidence while referencing a paper on Chinese...

Amazon's prices are determined by algorithms, to a degree. It's normal to see different prices depending on time and client, same as with airlines where nearly every passenger pays a slightly different price.