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  1. rvallee

    Review: Chronic Fatigue Syndrome, 2020, Sapra

    Sadly the lesson appears to be that as long as the PACE authors refuse to retract, nothing will happen. 3/4 of the authors of the retracted HCQ agreed to the retraction and it seems the other simply ghosted them. I don't know what Lancet would have done otherwise but requiring fraudulent authors...
  2. rvallee

    "When a Cause Cannot Be Found", 2020, Anjum & Rocca

    Not exactly bad, though I only skimmed, but it's a lot of unnecessarily fancy words for something that always has the same answer: you just keep working at it and if your tools and methods still don't solve it then you develop new tools and methods. The current approach is to constantly do the...
  3. rvallee

    Cochrane Review: Mixed exercise training for adults with fibromyalgia May 2019

    Why are there 3 versions of the same thing? I get they are slightly different but really, they are basically the same thing. (Two other Cochrane reviews on exercise for FM were also posted today). This one is a bit more honest than the other two about the reliability of evidence, but really...
  4. rvallee

    Cochrane Review: Exercise for treating fibromyalgia syndrome Oct 2007

    ?? These people are so weird. We clearly don't have the same notion of what gold standard means. It actually seems to mostly mean "we like that it confirms what we want to be true" in BPS world.
  5. rvallee

    Objective cognitive performance and subjective complaints in patients with chronic Q fever or Q fever fatigue syndrome: Reukers et al June 2020

    I am bothered by this term and need to know more: From another source because those tests are always proprietary and hidden from public view, but somehow many sources describe it as a malingering test and I have no idea how that even works: How does poor performance on that test invalidate...
  6. rvallee

    OMEGA (Oxford M.E. Group for Action) AGM - Guest speaker Caroline Struthers 14 March 2020

    Speaking of owls, I often think of this cartoon and how it relates to our nightmare.
  7. rvallee

    OMEGA (Oxford M.E. Group for Action) AGM - Guest speaker Caroline Struthers 14 March 2020

    Really interesting. Thank you Caroline, it's so important to document everything. I still constantly learn new details about things that happened years ago and, without fail, they always make things look even worse. Frankly it isn't just Cochrane that looks awful, it's clear that the entire...
  8. rvallee

    Trait and state interoceptive abnormalities are associated with dissociation and seizure frequency in patients with functional seizures, 2020, Koreki

    My model goes: woo woo woo woo! Arbitrary benchmarks be arbitrary. Reminds me of psychics who have this gizmo where if this book jumps up it means a spirit is talking to them. Can we make this a different book? It's all the same anyway. No, of course, must be this book, you know, the one...
  9. rvallee

    The association between exposure to childhood maltreatment and subsequent development of functional somatic and visceral pain syndromes, 2020, Chandan

    Childhood maltreatment is strongly associated with socioeconomic hardship, which itself has a much stronger association to chronic health problems. Doesn't take a genius to know that. All it would take is reliable records of socioeconomic status. You know, like how in biopsychosocial they...
  10. rvallee

    Fatigue in adults with primary antiphospholipid syndrome: findings from a mixed-methods study, 2020, Bearne et al

    Right. Sure. The presence of heavy smoke influences the intensity of the fire. Smart. Give these people a knighthood, stat.
  11. rvallee

    Objective cognitive performance and subjective complaints in patients with chronic Q fever or Q fever fatigue syndrome: Reukers et al June 2020

    :banghead: This is frankly supposed to be easy stuff, I don't know how someone can screw it up but, BPS I guess, it's the sticker that tells you something is useless. Researchers with no personal insight into brain fog will never select the appropriate tests. And even then you need to go...
  12. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Anyone know what happened to the other articles on Facebook? There was a mention of one of the articles having generated so many nasty comments against us the post was deleted. Did the other articles get posted too? Fear of the LP. Yes, totally, dudes. :rolleyes: What a bunch of blowhards.
  13. rvallee

    USA: Rep. Jamie Raskin introduces legislation to address potential rise in ME/CFS from COVID-19 pandemic

    The political situation in the US is not particularly conducive right now. But appropriations generally flow through as priority when budgets are due, so it's a question of when Congress resumes normal business. Right now there is a standoff between the two chambers as the senate refuses to take...
  14. rvallee

    Cognitive Complaints in Motor Functional Neurological (Conversion) Disorders: A Focused Review and Clinical Perspective, 2020, Perez et al

    But. Why? This is not a game. There are actual human lives at stake, millions of them. This requires science, not stories from people with no perspective on the matter. Our own narratives are ignored, why would the narratives of people with no personal experience be of any use when they...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Atlantic article was truly fantastic, the reporter really nailed the basic facts and how they tie together. Best coverage of the issue so far. Another article, seems like there is some growing momentum, it's written by the founder of Body Politic, which published a patient-lead report a few...
  16. rvallee

    Psychosocial Interventions and Immune System Function

    It sure can but a discipline is evaluated on its whole performance, this is the difference between professionals and amateurs. And it would fare so much better in areas they can actually help if they let go of this kind of nonsense, in a way they are impeding their own progress by holding on to...
  17. rvallee

    USA: Rep. Jamie Raskin introduces legislation to address potential rise in ME/CFS from COVID-19 pandemic

    Do we get a free sub when we reach the count of 12 resolutions directing the NIH to do their job? Feels like we're getting pretty close to that count. And wasn't there a resolution that passed months ago directing the NIH to formulate a strategic plan within 90 days, which have since passed...
  18. rvallee

    The Stanford Hall consensus statement for post-COVID-19 rehabilitation, 2020, Barker-Davies et al

    I cannot judge for things that fall outside of post-viral illness but for those the outlook is very poor, the medical community is significantly behind even the newly-formed COVID19 patient community and does not seem to have gained any knowledge from symptom presentation in the patient...
  19. rvallee

    Nurses for ME

    There is no visibility into what the CMRC is doing so kind of natural, before then I had seen nothing credible from them. I wasn't even aware Muirhead was involved with them, they are not exactly communicative about their work. If they are changing it's good, but a bit weird for a research...
  20. rvallee

    Well At School: Chronic Fatigue Syndrome, Crawley, Loades et al

    Yeah it's not exactly bad but so trivial and superficial it does not qualify as expert knowledge. This is high school level project done in 2 hours max level of competence. I'm OK with that level of competence, not from people who have inexplicably been elevated to the rank of expert despite...
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