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  1. rvallee

    (Thesis) Cognitive behaviour therapy for chronic fatigue syndrome Long-term follow-up and Internet-based treatment, 2020, Janse

    Completely clueless and incompetent. That it's acceptable to just make up your own redefinition of something is beyond absurd. Decades later, after years of clinical practice, it remains stuck at the starting line, nothing but assumptions about things that can be. True enough. Gotta give credit...
  2. rvallee

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    That's not nearly good enough. The warning should not be click-bait, it should be specific that it is about the review currently being re-evaluated for being entirely inadequate. It should also be in a colored box, something like a red background, much more prominent. This is design and...
  3. rvallee

    Do adolescents with CFS/ME & co-morbid anxiety +/or depressive symptoms think differently to those w/o co-morbid psychopathology?, 2020, Crawley et al

    Completely incompetent and clueless woo, as usual. Absolute abysmal incompetence. Quack quack quack. Just the most incompetent people to have ever worked in the field of medicine. This is just trolling at this point. Not borderline or something like it. It's blatant trolling.
  4. rvallee

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Very well-made. There are so few glimpses into the severe ends of this disease. Its disappearance by the fabrication of CFS/MUS/FND/WTF is one of the most egregious acts of violence perpetrated on this population. It's nothing short of criminal to enable this and there will need to be serious...
  5. rvallee

    News from Scandinavia

    I would be surprised if the real numbers of cases that can be explained this way, where the driving mechanism of physical symptoms is psychological, is above 1% of the numbers that are currently labeled as such. Everything else will have clear physiological explanations. Meaning a 99%+ error...
  6. rvallee

    Coronavirus - worldwide spread and control

    If this is validated and reliable, it could provide a breakthrough in monitoring outbreaks. Probably expensive but certainly less so than even periodic lockdowns.
  7. rvallee

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Is it really? Giving veto to the authors of a review over retraction certainly doesn't support that, especially when it's clear that the review is completely unreliable and does not meet any acceptable standards, especially a veto over a review that was essentially rating their own grading of...
  8. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    :facepalm: I do wonder if it's the explanation for the zealotry in guarding Wikipedia against reliable evidence, simply because it contradicts with Cochrane's incompetent disinformation. That would be incredibly bad, though not the least bit surprising. Fortunately if this is the case it can...
  9. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Well, let 'em lick that electric socket. It would backfire massively, essentially beclowning the medical authorities in the process. It's not as if it would make things worse anyway, it's already as bad as can be. Nothing reveals a scam better than putting dollar signs on it. Because meanwhile...
  10. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Despite my cynicism, even in the worst-case scenario I cannot imagine any health care system, public or private, would ever cover such nonsense as a legitimate health care thingy, no matter how flexible the idea of social prescribing may become. Maybe the absurdity of it all can be taken all...
  11. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This will make for such a fascinating study of the powers of Wikipedia and what is likely one of its worst failures so far. It will take a while for the self-reflection to be acceptable but the fact that for years it was impossible to even create the main article for the proper name of the...
  12. rvallee

    Investigation into the Pathophysiology & the Objective Neurophysiological Measurement of Cancer-Related Fatigue (ME/CFS control group),2020, O'Higgins

    This is the failure right here. It mixes motivation with fatigue and various manifestations of what could be fatigue but is unclear are the same thing. Words have meaning. Use those words with their proper meaning. This is something we learn in kindergarten and even before. If you call a cookie...
  13. rvallee

    INIM (NSU Institute for Neuro-immuneMedicine) webinar - 'Understanding ME/CFS Today: A Clinical & Research Approach' May 2020

    Considering I did not experience this, besides runny nose anyway, for a full decade of illness, it's probably one of those extra-hard to identify things because occurrence is a bit chaotic. This is what happens when no budgets are ever allocated for longitudinal studies. All those small...
  14. rvallee

    Do Women With Severe Persistent Fatigue Present With Fatigue at the Primary Care Consultation?, 2020, olde Hartman et al

    If you take a sampling of patients from a GP practice, it's obviously going to skew results by not factoring in those who have simply given up trying to get a GP to do their job. This is bad inference. Especially as it's typically advised that unless there are specific reasons for it, healthy...
  15. rvallee

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Doubly ironic is that acceptance and commitment are basically "giving in" to the "sick role" within the BPS model, the origin of it all, the foundational assumptions that formed the first 2 decades of self-promotion. In reality it's much more nuanced than this but those are two...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    And very telling that in COVID forums they basically say the exact same thing ME advocates have been saying all along, to the effect of "I don't feel fatigued I feel sick". I'm not saying it could confuse people, it already is confusing the crap out of people, things are FUBAR. And I've seen...
  17. rvallee

    My comments to the Cochrane review

    That makes some kind of very weak sense with CBT, even though psychological abuse from bad therapists is very much a serious issue that requires a flagging system, but GET is clearly a sort of physiotherapy intervention so it seems weird that it would be in the same category considering the...
  18. rvallee

    Coronavirus - worldwide spread and control

    We're finding out in real-time how those second and third waves happened with the Spanish flu. The worst thing about history repeating itself is watching it unfold and not being able to do anything about it. Fake news have deadly consequences. Always have, but now more than ever. And now that...
  19. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Simply calling it post-viral fatigue will confuse the crap out of people and likely do more harm than good. It really seems too much to ask for basic competence.
  20. rvallee

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Rube Goldberg's blunt mace of bluntness is a terrible choice over Occam's razor. Why are the ignorant personal opinion of people clearly way out of their league being given credibility? These people don't know their ass from a hole in the ground.
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