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  1. rvallee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Oh, yes! Post-exercise fatigue in a healthy body is basically a drug. Doesn't have to be fit. It can also hurt but then it will do both. It is a very pleasant experience, completely unlike the crippling exhaustion during illness. There are definitely variations between individuals but most...
  2. rvallee

    The feasibility and acceptability of an early intervention in primary care to prevent CFS in adults: randomised controlled-O'Dowd, Crawley 2020

    I am doubly puzzled by that statement because it is blatantly false, almost exaggeratedly so. In every experiment in fact it seems they have trouble recruiting, with some literally being cancelled because of this, and there are always high % of drop-outs. Plus the "satisfaction" is almost always...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That seems expected. The acute illness caused by each virus is slightly different, it's only natural that the chronic illness will have differences. It's the same fundamental problem with differentiating COVID from other respiratory viruses: they look so much the same. The commonalities and...
  4. rvallee

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    A cognitive test would be incredibly valuable. The right kind of test would actually be a good exertion trigger and could be useful for patients who cannot undergo physical tests. Is there a repository somewhere of such tests? Maybe we could help evaluate them? This is such a difficult topic to...
  5. rvallee

    Covid-19 - Psychological research and treatment

    Considering there is no such thing as "post viral depression", no, no preparation needed. All this is showing is that the field of mental health literally cannot tell depression apart from other things. Same with anxiety. Or frankly mental illness. It's literally all just guesses and opinions...
  6. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Her "expertise" appears to be, no joke, reliability of evidence. Which is like a self-proclaimed pro chef serving you a cold hot-dog on a white bread slice. Oof. There are so many things wrong with medicine holy crap what is this nonsense? It's like the whole field is a mix of science held...
  7. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Being on the wrong side of quackery with the alternative medicine industry is like being told by the village drunk that you have a drinking problem. Or a notorious gambler who lost everything twice telling you that you have a gambling problem. It's hard to process the absurdity of actual medical...
  8. rvallee

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Well we recently learned that it was originally created by Simon Wessely so, yeah, it definitely was. Of course Chalder's, uh, "thinking" is also horribly muddled and uncritical but then the explanation for both is the same. The whole thing about PROMs, about "measures" that aren't even...
  9. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Mine was pending for several days but I see now it has been approved. So there's that.
  10. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Pretending this is new is absurd. Even if we ignore the ME elephant in the room, many other viruses have lead to similar long-term illness, lifelong in many cases. It being a different virus doesn't change the fact that this phenomenon is far from new, in fact repeats itself with regularity. Not...
  11. rvallee

    Symptoms of Covid-19

    Interesting informal analysis from a community survey: https://docs.google.com/document/d/1KmLkOArlJem-PArnBMbSp-S_E3OozD47UzvRG4qM5Yk/edit#. An Analysis of the Prolonged COVID-19 Symptoms Survey by Patient-Led Research Team It's very ad hoc but still an impressive effort. Formal studies of...
  12. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Honestly as long as the CBT-GET paradigm remains, I have no issues with LP being up there with it. They are equally worthless and have identical "effectiveness" (0=0) so the more LP gets exposure, which will inevitably end up in shameful embarrassment, the more it splashes on the ideology. I...
  13. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What about fairies? Cosmic dragons? Karma:Thetans ratio? Humour imbalance? Planetary alignment? Wait, that last one is a bad example it's actually testable. Later admits it's untestable so what's even the point in suggesting what's been obsessively promoted for decades to massive institutional...
  14. rvallee

    The feasibility and acceptability of an early intervention in primary care to prevent CFS in adults: randomised controlled-O'Dowd, Crawley 2020

    It would help us. In fact it would save millions of lives. It would also destroy their reputations and careers. That choice was made long ago. Escalation of commitment is a harsh and unforgiving master.
  15. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    The responses from Cochrane are infuriating but this is a solid base of constructive criticism. First things first: it's going in the right direction, which is a refreshing change from haphazardly collapsing into imaginary dimensions that was the starting point of the current disaster. Still...
  16. rvallee

    Covid-19 - Psychological research and treatment

    Showing she has no idea what brain fog is. Well this is embarrassing. Or it would be if things mattered. "Trust us we're experts" is going to come out very badly out of this. It breaks the entire premise of professional certification.
  17. rvallee

    US HOUSE action and COVID Leg package update

    That would be huge. There are going to be billions... BILLIONS... in funding going to COVID research. Even a tiny % of it would basically dwarf the current annual worldwide ME funding from all sources combined. Because right now the NIH is still at the "we hope it does not happen" phase from a...
  18. rvallee

    JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study May 2020

    Oh well. Guess it's not competent. My muscles are working fine. I have not lost strength at all, it's almost puzzling in fact. They simply cannot sustain the effort, though. And they hurt all the time but whatever. I stretch and do very light exercise many times per day. My muscles are...
  19. rvallee

    JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study May 2020

    Never heard of them but the more* the merrier. * provided it's competent, we'll see...
  20. rvallee

    The feasibility and acceptability of an early intervention in primary care to prevent CFS in adults: randomised controlled-O'Dowd, Crawley 2020

    Being unable to properly diagnose patients because of incompetence and ideological fanaticism is indeed problematic in doing early intervention. Or any intervention at all. Including the intervention used in clinical practice for well over a decade, timing is irrelevant when there is no basis...
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