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  1. Wonko

    droopy mouth ?

    Early on, within a few years of onset, I had something which sounds similar. I have always ascribed it to a 'side-effect' of tegretol, which they were giving me because they suspected some form of epilepsy was causing my cognitive issues, as once I discontinued that it decreased in severity...
  2. Wonko

    BPS attempts at psychologizing Long Covid

    It'd be nice if it did. One little pill to give someone a minor diagnosable psych condition.....could cure cancer, heart disease, or maybe even the effects of being in a plane crash. Hoyfully they ate work8ng on this
  3. Wonko

    BPS attempts at psychologizing Long Covid

    He really doesn't like, well, patients, it seems. Or mathematics. If 20 percent had a prior psych diagnosis that means 80 percent did not, so how can that 20 percent, even if valid, be used as an explanation for 100 percent.
  4. Wonko

    Association of fish oil supplementation with risk of incident dementia: A prospective study of 215,083 older adults, 2022, Xiaohui Liu et al

    Thing is...humans, in fact all life, don't like aquatic life existing. First we spent millions of years to get out if the oceans, into what was largely desert, when at the time we couldn't actual breathe out of water. More than a mild dislike of other aquatic life. Must have been some row...
  5. Wonko

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    But surely an infectious disease specialist cannot be expected to know anything about one of the most well known infectious diseases outbreaks, that killed tens of millions, in recent history? That surely isn't something he should be expected to know? It's not as if he was a historian. Just...
  6. Wonko

    The Atlantic: The Millions of People Stuck in Pandemic Limbo, 2021, Ed Yong

    that sort of behaviour has been deemed criminal assault - presumably to distinguish it from all the other forms of non criminal assault.
  7. Wonko

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Possibly with a suggestion that in light of the unscientific methodology that they should really be entitled to a full refund from various people, and should consider instigating proceedings against them for fraudulently obtaining research funding, if this isn't immediately forthcoming?
  8. Wonko

    Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022)

    Removing inaccuracies in reality, where it is at variance with doctrine (clinical experience) to elucidate and enhance the truth?
  9. Wonko

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    As I'm fairly sure any response I could make to that news would be seen as petulant, obvious, pointless, or mainly, against forum rules....... I won't...... other than the above, obviously .
  10. Wonko

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He might be one of those 'patient activists' I keep hearing about - possibly the most prolific in history. Which is pretty good going given it's entirely down to the strength of his brain. The very same brain that decided his behaviour is professional, appropriate and will benefit patients, as...
  11. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Heard it all before, don't think I remember swathes of people with ME getting better then, despite the hype. I am coming to the conclusion I should just take a load of sedatives and not wake up for a few years and see if the same marketing as I've seen before is still ongoing, and if so take...
  12. Wonko

    Help Me Write A Quantum Leap Episode About ME

    Quantum leap has never really been overly concerned with things being realistic lol
  13. Wonko

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Not entirely true. All it has to do is get the patients to go away and not come back, so they can be counted as 'cured'. Obviously the cheapest way of doing this would be seen as the most cost effective, medically.
  14. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Dunno - surely those that reported loss of taste/smell would have been diagnosed with depression? They seem to like doing that for several years per patient. My sense of taste and smell vary a lot, sometimes nothing tastes of anything, sometimes tastes are odd/fowl. It's 'complicated' by the...
  15. Wonko

    BPS attempts at psychologizing Long Covid

    ...all whilst most of medicine says it doesn't exist, as a thing, as opposed to a cultural delusion. I wonder at which point medicine will change it's mind - 50% off work, 75%?
  16. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    But...most people have heard of telekinesis, and by that logic that means that they must therefore suffer from it, so not being able to lift their hands should be no barrier to either eating dinner, sports, or working.
  17. Wonko

    Open NIH: Proof of concept trial on the effect of Ketamine on Fatigue Study

    Ketamine, whilst probably not entirely legal, was pretty freely available in the UK 10-15 years ago, and used for pain relief for those involved in certain 'sports'. It could be freely bought online from many 'sports' sites (weightlifting in particular, but also sites selling MMR gear etc.)...
  18. Wonko

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    It may have changed (although having read both this and the earlier version I am not sure how) but it is still a blatant marketing piece for CBT, using the updated NICE GL as a bad guy to make a point. As such I personally see it as a deliberate attack upon both those with ME and any 'support'...
  19. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    erm....award for the most pointless use of trillions of dollars of technology goes to.....
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