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Thanks. Might be worth bearing that in mind when listening to Crawley's talk.

As we've got a new forum, now when I come across an old annoying thing I thought I might post them up for newcomers' pleasure. There's been a lot of discussion recently of how treatments like CBT can encourage patients to fill in questionnaires more positively, even if more objective measures...

Thanks to everyone making submissions to this sort of thing. My understanding is that they do tend to be read by people with some influence, so it's probably a better use of time than a lot of other writing we do.

That looks hopeful that there might be some willingness to investigate. We really need to get people to start digging into this themselves. Hopefully Anton Mayer will be able to do a worthwhile follow-up.

LOL at 'it just is'. What a perfect response to scepticism.

"Recovery isn’t a possibility – it’s a certainty. It just is…and I am…" How inspiring. "Due to its outstanding positive results..." Where?

No probs. Sorry if I over-explained bits. It has been a really long time since I thought about XMRV, so I may well have forgotten important details. Personally, I don't think it's worth even looking into at this point. This was the paper Mikovits co-authored which showed her own earlier work...

Not all the details are clear, but people didn't really want to invest limited research funding into finding all the details once the research indicating XMRV was associated with disease had been debunked. The test for XMRV was unable to distinguish sample from CFS patients and healthy controls...

I can forget PhD students start so young... or maybe, ten years ago 21 didn't seem so young to me.

Thanks Paul and others. Looks like only a few people were able/remembered to take part, but still that concerns about their ME work dominated the discussion. For the rest of us, we've got another session tomorrow: Tuesday 7th November at 20:00 GMT.

First tweet chat is: Monday 6th November at 14:00 GMT I know I've had a couple of twitter accounts, but I keep forgetting the passwords for them so might try to borrow my partner's (assuming I my brain is in gear for this). I hate how short tweets are tbh. It makes it much harder to be critical...

When it comes to drippy 'compassionate' nonsense dressed up in pseudo-intellectual prose, not many girls are going to be able to beat Vincent Deary! Thanks for that. I've uploaded the poster here, as things like this can go missing right when you want them! I've heard bad things from others...

One of the reported 'achievements' from this project was the creation of this blog: https://inturnship.wordpress.com/about/ Nothing posted on it yet. It looks like this NLP thing is being assessed in a feasibility trial paid for by NIHR. It looks like there may be no control group, but they...

Yeah, I think a desire to question and challenge a system can limit ones ability to succeed within it. A lot of bright critical thinkers I was at school with dropped out before even properly completing their exams, particularly if they had tough home lives as well. A lot of medical researchers...

Promotion of 'RyL' (rebuilding your life) here: http://theedge.nhsiq.nhs.uk/wp-content/uploads/2016/10/RyL-information.pdf I've also attached a copy. It promotes the relentless 'process' of recovery. It also includes this: I think that the King's fund is quite influential, but they seem to...

A 2015 poster: 2017 poster: http://insight.cumbria.ac.uk/id/eprint/3074/1/Cox_FeasibilityStudy.pdf

Looks like they also did a performance: https://showtime.gre.ac.uk/index.php/feh/bt/paper/viewPaper/937

I started a new thread on that document from @Sbag here: https://www.s4me.info/index.php?threads/co-creating-recovery-in-cfs-me-a-reflexive-exploration-of-a-rebuilding-your-life-programme.761/

@Sbag posted this in another thread, but I thought it was worth it's own. "Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme Hilly Raphael (Quigley) October 2015 (final version with Addendum - participants’ responses Nov 2015)" It say things like...

Sorry - I thought you meant he'd written it. I think I'll edit my post now.