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Alas, I became sensitive to fibre metabolites (I believe it's the propionic acid, but it could be the butyric) a couple of months ago. After decades of above average fibre intake (with no problems from it), even small amounts will make me extremely groggy and sluggish the following day, and it...

I expect on some of those questionnaires, if you answered 99 questions 'no' and one that was vague enough to be considered 'yes', the psychiatrist would say: "Aha! You are definitely depressed. Here's your prescription. Problem solved." I suppose a lot of questionnaires are just...

What would a questionnaire about the usefulness of questionnaires show?

Catastrophizing? Kinesiophobia? Leading the subject much?

Darn, I thought the wound healing application had been verified, and I thought I'd read about it in a credible source. Maybe someone will start rating the journals on their percentage of published papers that actually get verified by one or more other groups.

Well, they're nearly identical in that they involve scientific-sounding concepts that are mysterious to most people, and thus easy to make magical claims for. "Magical" electricity and magnet treatments have been around for hundreds of years ... with no proven success, so reskinned versions...

I have an alternative hypothesis: that it's not the overall effort of the activity, but the microtears that occur when using your muscles in ways that you don't usually do, which in turn activates the immune system. I could ride my bike for hours without triggering PEM, but climbing a ladder...

It depends on the type of cognitive effort. Back when I still got PEM, socializing and driving were the most noticeable triggers, and the PEM from driving increased with the driving conditions (icy roads at night were horrible). Number-handling didn't seem to be a problem nor did strategy...

Posts moved from this thread One thing about my ME is that I never noticed any reduction in my physical ability. I didn't do any fancy tests with fancy lab equipment, but my ability to dig large volumes of soil, or handsaw firewood, or ride a bike up steep hills, didn't seem to change. Other...

This triggers a question: do any other languages have better words to differentiate between these similar but unrelated symptoms? Does, for example, Chinese writing have different logograms for fatigued, tired, and exhausted? Hmmm, is there one for brainfog? On I suppose a related note, I...

While checking for something else, I noticed that Google's 'list of common questions' showed this: Does Graded exercise therapy work for CFS? A recent Cochrane review of graded exercise therapy (GET) for chronic fatigue syndrome (CFS) concluded that GET is effective and safe (Larun et al...

Were the tests done on patients who were severe? If not, the results might not apply to severe patients. I'm really skeptical about the precision of the results (14% rather than ~15%). To me that reported precision means they may have cranked out the numbers with no real feel for what they...

CSF may not contain the abnormal metabolites that might be occurring in ME. It's possible for them to be localized to specific parts of the brain.

Hmmm, pretty complex systems.

It's a shame that they didn't include one or more other groups, to test the comparative effectiveness of watching TV or playing computer games or eating donuts. I hereby recommend that all similar types of studies in the future should include such alternative treatments.

@DMissa , perhaps you can comment on my hypothesis about dietary niacin causing suicidal moods. I started getting suicidal moods soon after developing ME. I eventually figured out that the severity correlated with both TRP and dietary niacin. So, my hypothesis is that ME causes elevated QA...

Yup, not very useful, especially since it's anecdotal evidence. My guess is that if they'd asked people to try magic crystals or random treatments meant for disease unrelated to ME, they'd come up with fairly similar numbers.

The comments mentioned another thread about someone who benefited from it, but also a comment from someone who almost died from taking it. I remember coming across a list of treatments PWME have tried, and how they rated them. The results didn't seem all that useful, at least for trying to...

I expect there would be plenty of volunteers from the ME community who would be willing to give this a try. If it doesn't help significantly, at least it would eliminate some theories.

Yes, we still have no reliable test for actual fatigue, or even a clear definition of what fatigue is, so asking a patient "Do you feel fatigued?" doesn't help much in diagnosing a disorder. The same holds true for a lot of symptoms. "I don't feel well and I can't think clearly." is not going...