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  1. shak8

    Why does fibromyalgia need a catastrophization scale?

    Whoops here. I'm having another catastrophizing session (i.e. bad week). OK, I'm exaggerating = I'm catastrophizing. It's just that Saturday, I had a two-hour conversation with some very bright and empathetic neighbors after a short walk. Shouldn't have. My personal time limit on any outing is...
  2. shak8

    How many of you have cats and how many have been tested for cat scratch disease?

    CDC website has good info on the risks of feces, mainly when cleaning the cat box, new kitten, etc. https://www.cdc.gov/parasites/toxoplasmosis/gen_info/faqs.html
  3. shak8

    Prediction of long-term outcome after cognitive behavioral therapy for chronic fatigue syndrome, 2019, Knoop et al

    And further: pain behaviors concept comes from operant conditioning, a la BF Skinner. That if you extinguish these pain (or fatigue) behaviors (which includes talking about pain or fatigue, by the way), then you are going to have less pain or fatigue due to operant conditioning. What a...
  4. shak8

    Prediction of long-term outcome after cognitive behavioral therapy for chronic fatigue syndrome, 2019, Knoop et al

    To add to "fatigue behaviors." Looked at PubMed and couldn't find anything for chronic fatigue syndrome and fatigue behaviors. Pain behaviors had papers in the 1990s, so I think that concept is old hat. Someone's seen the need for a revival. Must be pretty desperate (or stupid).
  5. shak8

    Prediction of long-term outcome after cognitive behavioral therapy for chronic fatigue syndrome, 2019, Knoop et al

    Fatigue behaviors, I imagine, are actions that signal to the psych cult that you are fatigued. Your position, lying on the couch, not moving, whatever. I know the term pain behaviors because I have pain and pay attention to the psych garbage (though it's traumatic and I'm stopping it). And it's...
  6. shak8

    Prediction of long-term outcome after cognitive behavioral therapy for chronic fatigue syndrome, 2019, Knoop et al

    These psych/psychiatry folk are a cult. I am silently wishing some ME cases among them. Try drinking your own CBT koolaid then, why don't you? Same thing happening w/pain patients.
  7. shak8

    TheWEL courses - David Reilly

    He needs a major developmental edit, proofreading, etc. My personal opinion about docs who become "healers" is that they don't want to work as hard as docs do in practice. Notice how he felt better having left the NHS. It's a much easier lifestyle to not do the science and art of medicine, but...
  8. shak8

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    That's some dangerous snake oil. Why not just suck on some drain cleaner?
  9. shak8

    Cognitive factors are associated with disability & pain, but not fatigue among physiotherapy attendees with persistent pain & fatigue, 2019, Antcliff

    The Chronic Pain Self-Efficacy questionnaire was developed in 1980 by Nicholas, et al. Basically it is a tool used to evaluate whether someone will return to work and off benefits vs not. It measures how much a person is able to function in activities of daily life despite their pain...
  10. shak8

    BBC News website: 'Rabbits gave me a reason to live'

    Just one more rabbit post by me: Rabbits are prey animals. Ever alert to danger all around them. Yes, cute and furry with adorable little mouths and whiskers, big ears. All the better to hear encroaching predators. Of course as a child I was attracted to the rabbit's beauty, as well as its...
  11. shak8

    BBC News website: 'Rabbits gave me a reason to live'

    As you can imagine, wonk, I will never and have never eaten rabbit. Well, I guess if I were starving, yeah, I would.
  12. shak8

    medical professionals, psychologists, and researchers

    As a former nurse, I hear/heard cavalier remarks about ME and fibro. Personnel tend to be brutally abrupt and dismissive about anything they, or their family members haven't experienced themselves. Sure, cancer & MS evoke sympathy, but the mentality of healthcare personnel seems to be: I work...
  13. shak8

    BBC News website: 'Rabbits gave me a reason to live'

    My dad gave me a stuffed rabbit after a business trip. The minor but only emotional rapport I had in my family was w/my dad. The rabbit is my childhood essence, my spirit-animal. Still is. Shak is short for shakota, a Pomo Indian dialect word for rabbit. The first rabbit I had was bitten in...
  14. shak8

    Neuropathic pain

    I had an increase in pain last night but I thought maybe it had actually decreased last week (due to lipoic acid started...?). Did a Cochrane lookup of the lipoic acid. There's the one positive Chinese study but of questionable quality. The other study was with cancer patients who had...
  15. shak8

    Microbiome testing reports discussion

    I am a participant in a large, on-going cohort of nurses being studied by Harvard School of Public Health. It's called The Nurses Health Study II. I've been asked to submit my stool and the same day a saliva test. Questionnaires ask about diet (fermented, yogurts, whole grains, etc. etc) in...
  16. shak8

    Persistent Physical Symptoms as Perceptual Dysregulation: A Neuropsychobehavioral Model and Its Clinical Implications, 2018, Henningsen et al

    Pain is a highly evolved survival mechanism. If you are experiencing pain, you do pay attention and you are meant to pay attention, and your brain will try to find the reason for the pain. Whatever they are cooking up here, it will be useless clinically for those with severe pain, as well as a...
  17. shak8

    Royal College of Physicians article: "Do you really believe in ME?" by Dr Nina Muirhead

    After watching "Jaws", my eight year old son wouldn't take a bath for three months as he was sure a great white could come in from a fresh water lake through the pipes.
  18. shak8

    Neuropathic pain

    Hope there is something else for you to try. Sounds like neuropathy to me, itching burning, etc. New drugs should come out at some point. Are you diabetic? Have you been allowed an opioid for the pain? Maybe another anti-seizure drug or something. Ask an endocrinologist? I have fibro and am...
  19. shak8

    Neuropathic pain

    You've got me curious. If you wade deep into the research article, they say that an oral dose of 600mg per day is the best of both worlds, as 1.2gm dose gives 27% of participants nausea. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2836194/ I'm trying 4% lidocaine cream. Directions say: do NOT...
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