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  1. shak8

    Fibromyalgia and the Gut Microbiome

    The hypotoxic regimen (French) for inflammation, a cure-all, panacea for what ails one. There is a book out, website, meal delivery. Hmm. Reminds me of Teilelbaum's book: From fatigue to fantastic. Fallacy: an appeal to authority, as in Trust me, the author, I am a physician (or some other...
  2. shak8

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Pacing pacing pacing...up and down the living room and hall. That is what I used to do when I ran out of pain meds. I think that too much list making is a sign of anxiety. Don't most with ME develop, over the course of their illness, a form of pacing that works for them, empiric. Why do...
  3. shak8

    "Complex Regional Pain Syndrome, Fibromyalgia and Chronic Fatigue Syndrome: Psychological or Physical Diseases?"

    On the same website (medico-legal partners.com)there is a What is Fibromyalgia video from Jan. 2020. An MD explains fibro in his introduction which I find damaging: I paraphase: Fibro is often triggered by a physical cause (injury or surgery) or a psychological cause. The pain level is high and...
  4. shak8

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    Of course @James Morris-Lent, I can't even read the hiragana! My son is working for a Chinese company and I find myself reading everything about China. Since Kanji came from Chinese characters there is some concordance with Japanese. My son is not nerdish like me, so I'll have to use stealthy...
  5. shak8

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    I was able in the past (while disabled) to take one course a semester (two hours twice a week) at a low cost college. I did 3 semesters of french and dropped out of the 4th semester of Spanish (was too late in the day). Seven years of that. I had and have the means to pay for the French TV-5...
  6. shak8

    Tinnitus treatment and management

    Very helpful stuff. My tinnitus is mild, I'd guess, high pitched and one-sided and started 10 years ago, associated with hearing loss and becoming unconscious as a child after quite a fall from on high. I use ear plugs and noise reduction headphones in the house to soften the screech. Does help.
  7. shak8

    A randomised, placebo-controlled, double-blinded trial of duloxetine in the treatment of general fatigue in CFS, 2014, Arnold et al. Cymbalta

    I won't take any antidepressants of the newer variety (SSRI, etc). I tapered off Paxil too fast and it provoked a type of mania (not meeting the threshold of mania, but still very weird and disconcerting to those around me and me, also), according to a shrink I consulted. I have primarily...
  8. shak8

    Still to open University of Cincinatti - Department of Psychiatry and Behavioral Neuroscience

    I sent an email to Dr. Leslie Arnold asking about the CFS study. She is well-known in the fibro research community, used to work at the U of Michigan and did drug studies on the newer fibro drugs. Edit: She is not associated with U of Michigan. Edit update. Dr. Arnold wrote that she is...
  9. shak8

    Pain Catastrophizing Affects Stair Climbing Ability in Osteo Arthritis (2019), Suzuki, Y et al.

    This research in Clinical Rheumatology arrived in my Stork reseach feed this morning. https://doi.org/10.1007/s10067-019-04881-y Is there no end to the fad concept of catastrophizing? Could it be that people with knee osteoarthritis know from experience that stair climbing, above all other...
  10. shak8

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    Replying to myself here, but I looked up Eric Gordon's medical license in California (because I am so adverse to quack docs) and he has a 3 yr. license probation which makes for interesting reading...
  11. shak8

    Article : Are Regulatory Bodies Prioritising Drug Company Interests Over Public Safety?

    This being California (anything that quacks), a local board-certified shrink who sells vitamins on his website, is offering IV ketamine for a host of psych problems (listed: OCD, depression, PTSD, and anything and everything). He also gives talks to physicians about the benefits of ketamine...
  12. shak8

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    I should add that Gordon has participated in a metabolomics research project and is focusing more on research these days, so not all bad (I hope).
  13. shak8

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    First thing, Psychiatry Advisor is a marketing tool. The company compiling it is Haymarket Media https://www.haymarket.com The author of the article has a master's degree in library science, not science or psychology. So, it is not a peer-reviewed medical journal and its content is not of high...
  14. shak8

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    That sounds as bad as the shrink I went to (someone my Dad knew) when I was on the verge of a breakdown. I was 17 or so. I remember him asking whether I had orgasms or not and his mimicking with his hands the actions of the male and female parts, I kid you not. I was not consulting him about...
  15. shak8

    Developing a better biopsychosocial understanding of pain in inflammatory bowel disease, 2019, Moss-Morris et al

    I think there needs to be an IQ test and higher threshold for prospective PhD psychology students.
  16. shak8

    A Cross-National Comparison of ME and CFS at Tertiary Care Settings from the US and Spain (2019) Castro-Marrero et al

    How representative were the samples of each country's population? How to compare such disparate groups, cultures? The Spanish cohort were less educated, and more often married and working either part-time or full-time. No wonder they complained more.
  17. shak8

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    Don't you just love the research of the obvious and more confirmatory research of the same? Ditto the symptom of depression when one of us is having a severe crash, or catastrophizing more. Duh. Enough already.
  18. shak8

    Senator Dianne Feinstein tweeted about ME yesterday!

    She's my senator; I'll write to thank her and urge more action/funding.
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