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I did write him a quick email reply saying exactly that.

https://www.conqueringfibromyalgia.com/encore?r_done=1 This webpage has the interviews. Mostly chiros, alternative (quack) MDs, reverse fibro? Right. That will hook a person.

I got an email from the Jarud Younger Lab today touting a email conference led by a Dr. Aviles. So, out of journalistic curiosity, I signed up for the newsletter and started to get a series of daily emails by quacks who are doing their fall promotions. These are cash businesses. There's no...

I use capsaicin cream for my arthritic knees and back pain, as well as for fibromyalgia muscle areas in my mid-back. It is recommended by arthritis doctors because it is effective and has been studied. It doesn't work instantaneously though. Get the highest strength for the best effect It works...

Just eat. A balanced diet, lots of vegetables. Food is meant to be enjoyed, savored. It is nice to know that your pooh is from food ingested 48 hours ago, roughly. So if you're constipated, you didn't eat enough fiber and water or took an extra dose of opioid, two days prior...roughly. Simple...

I hope this is a pretty important avenue for more research. Sounds promising to me.

What a screwy skewed schema. (Psychology is a recent little brother of philosophy and in this case, completely irrelevant and a huge waste of tax money.) So-called objectivity? Where? Because they use phrases? Da-da-ga-ga has more meaning.

Someone who carries all those initials after the MD, to me, is suspicious.

Why is it assumed by medical people that the patient is too dumb to figure out how much she is able to do and what she should refrain from doing? What happened to the concept of learning from patients or is that only done in certain types of nursing research. Why is it that medical people...

I have been diagnosed with non-allergic rhinitis. I am to do sinus rinses followed by a nasal steroid twice a day. If I don't, or if I have a cold virus, I can get a lot of vertigo, which ain't fun. I also had shortness of breath due to the bronchi reacting to the post nasal drip, I suppose...

The overly broad generalizations about psych therapies being so direly useful--is just baked rehash-trash. Sure, some people, when just diagnosed, need to try to relax a little when they have chronic pain. But perhaps sessions with an occupational therapist would be more useful. Of course...

Mute it a little, perhaps lower the high-pitch a little. It's the gestalt of the tinnitus plus ambient noise that both the ear plugs and noise cancelers work on. Don't know how others w/tinnitus would say.

I use ear plugs AND Bose noise canceling headphone all of the time, except when I'm out driving. At stores, I just use ear plugs. I have to use both because I have tinnitus as well as noise sensitivity. And despite these measures, noises still bother me. I suppose my brain interprets apartment...

If by treatable you mean there are approved drugs that do some a little improvement, then sure, it's more treatable. The prognosis for fibromyaglia patients (by Dr. Robert Bennett, of U-Oregon and who had thousands of fibro patients and who discovered the growth hormone deficiency due to sleep...

If Maryanne gets the nomination, I am leaving this nation. Would England take me back after a 410 year absence?

Excellent, written by disability lawyers. For USA socials security disability and private disability insurance claims. Section on the adult and the need to have a daily written journal of ME effect on activity by the ME patient--this is crucial. Well done!

Biopsy those buggers

I dropped out (never sent in specimens) out of Harvard's Nurses Health Study of gut microbiome in a cohort of nurses. They did have a dietary recall element of test (which I found quite unreliable and complained in the past as to its accuracy, but they assured me that it is okay). So at least...

Once again this illustrates the psych researchers world: feeling superior to sufferers and lacking empathy and well as IQ. This is why I can't bring myself to read any more of their mindfu****g tripe.

I have moderate-sever fibro with a mild level of PEM (30-35% normal function), probably no ME/CFS diagnosis because I lack the immunologic symptoms such as swollen lymph glands and fever. Whatever the trigger for my pain-exhaustion, if it is bad enough, every sense is heightened and at least...