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:banghead:

I would have thought this would be a priority for the charities. If they can’t fund need to get bidding for lottery funds, get on to some of these trusts that are happy to fund Crawley.

From 2010 and 2014 respectively

Ah ok yes I didn’t think of that.

Clicked on the link to the article corresponding author is Manoj Sivan. I can’t copy the email address from the pop up box tho.

@Gecko hope it’s ok to tag you. id be interested to know whether Sheffield Healthwatch are going to be sharing this with national Healthwatch and other local Healthwatch organisations. I’m going to use this to contact my local Health watch and the ICB in the new year.

Yes it grates on me. For one thing as someone who has gradual onset ME I don’t actually know precisely how long ago I started being affected by the illness. Certainly over 10 years before diagnosis. Yes I did normal unexceptional active stuff at one time, country walks, aerobics class for a...

Welcome to the forum @winston :thumbup:

Just tagging @dave30th in to make sure he sees your posts @Midnattsol

The MEAssociation one https://meassociation.org.uk/product/mea-alert-card/ I’ve not got one just sharing.

That’s a good report from the Facebook group

yes @Wonko was going to write the same post

They really think they know so much more than we do about how we should be living our lives.

Yep surely going into or looking out at your garden if you have one or good tv nature documentary or YouTube meditation video of countryside would do the job

Basically being in nature https://en.wikipedia.org/wiki/Nature_therapy

They described FINE 2006 as recent. Strange concept of time. Also list long term conditions and include MUS in the list as if MUS is actually a condition.

Knowledge of x increased after a workshop on x and the participants felt more confident about their knowledge of x. Basic staff training happy sheet results for one small workshop is being passed off as academic research. One word. Risible. :rofl::rofl::rofl::rofl:

Yep the ridiculous way they use that questionnaire :banghead: as if it demonstrates anything other than chronically ill people have a range of symptoms

Yes good idea about eye tracking. I’ve heard about it’s use in testing how people use websites, the F pattern, scanning for headings etc. so I imagine there’s data out there about how healthies do that that could be compared against people with ME and other energy limited folks.

https://www.bbc.co.uk/news/health-63744643 Article about work on a universal flu vaccine.