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It’s an advert for a private alternative therapy provider then.I was wondering how cranial sacral was being provided through an nhs service. in fact there are no NHS services for MECFS in Staffordshire

Service evaluation or study? very small numbers High percentage opted out Insignificant

Yeah probably if I was writing something formal that’s what it would be but their is what came out of my brain

Brilliant @Trish feel like you’re channelling Graham with your combo of poetry and his bete noire dodgy questionnaires :hug:

Brazen disregard, would be very interesting to hear what the HRA have to say about this failure to comply with their report given they had obviously gone out of their way to make the minimum possible findings to limit the impact on Crawley.

As it is a Swiss team quite likely they don’t have English as their first language and the term chronification arises from translation from another language.

That’s good news.

And just to point out these are not uk based ‘researchers’

Electricity machine sellers have been doing this since 1851 https://www.bbc.com/future/article/20170215-the-strange-victorian-fashion-of-self-electrification

They can send it to journalists who contact them. They can send it retrospectively to journalists who don’t contact them especially if the resulting article is deficient

Sounds bloody awful @JohnTheJack ive heard trigeminal neuralgia described as terrible I hope you have/can get some pain relief to at least reduce it virtual hugs

@Hutan on comments about recovery from ME do you mean the majority of people who recover from ME do so within 2 years Rather than the majority of people who have ME for 6months recover within 2 years? recovery best information is 5% according to ME Assn purple book.

I used to hate going into the office when I was in large open plan environments. People would all be sitting at their desks taking part in different teleconferences, all talking at the same time and it was very distracting. The best thing was actually being able to go for a coffee and...

Microwave meal research

Don’t see why they couldn’t have published HTML on the DHSC area of Gov.uk https://www.gov.uk/search/policy-papers-and-consultations?organisations%5B%5D=department-of-health-and-social-care&parent=department-of-health-and-social-care

I think if you’re able to email it would be worth informing AFME and MEA and asking them to take this up with the BSF people.

There’s a thread here discussing issues with Wikipedia content about ME

:wtf:Workability? Well I suppose some managers and occupational psychologists may see employees as a product like clay to be manipulated and moulded. ‘ability to work’ would describe whether someone is able to work or not, even work ability would do it

These people! They’re just projecting their own problems onto us.

Hope you get a way round this @Sarah94 I can’t advise tho it appears to be one of the few advantages of having a fat face.