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https://www.bbc.co.uk/news/health-53467022 Stephen Holgate is a co-founder of Synairgen. They originally developed this for asthma and COPD etc "The treatment from Southampton-based biotech Synairgen uses a protein called interferon beta which the body produces when it gets a viral infection."...

I think this also refers to frances Williams: "Williams and Hornig are both making use of apps they and others have developed to identify and track the progression of long-haulers. Williams’s app, which encourages people to log SARS-CoV-2 infections and submit regular reports on their symptoms...

This could put a few spokes in the Central Sensitization Pain theories.

Professor Frances Williams quoted above re the PACE trial spoke at CMRC 2018. She works at Kings College and spoke about the heritability of pain.

Chris Chambers from Cardiff came across as very approachable when he spoke at the UKRN launch Feb 2019. He is on the steering group for this. https://www.cardiff.ac.uk/people/view/133632-chambers-chris I had gone mainly to hear Hilda Bastian, who was unable to be there as, sadly her MUm had died.

For anyone in the Oxford area I am sure they would find the bio of the CFS clinic lead interesting: Dr Daniel Zahl Clinical Psychologist Daniel is the Clinical Lead for the team and has worked in the field of chronic fatigue for the past ten years. He was involved in the UK's largest CFS...

@Gecko @JaimeS @RuthT have you seen the above and #880

And I thought you were going to suggest shoving it somewhere else @Invisible Woman!!

Or that those physios who have been following its recommendations are well in there!

@Forbin you've captured a great likeness

Yes and those who actually listen to their patients realise that GET and PACE-style CBT do not work, but have to phrase their approach in terms that still qualify for CCG (Clinical Commissioning Group) funding.

There may also be issues with privacy/consent. For example, I understand that the photos of people with ME, collected by MEA cannot be used by other organisations, as when they were supplied it was "for use by MEA".

Very interesting find about Professor Paul Garner. (Yes the longhaul COVID patient who has been in touch with Charles Shepherd and acknowledges concerns re ME developing in some people post COVID.) "I was part of the original team that set up the Cochrane Collaboration, and currently I am the...

Whoa, I can feel a lot of expletives coming on, even from just the abstract! "The experience of stigma from healthcare providers and their own social networks (Dickson et al. 2008; Larun and Malterud 2007) powerfully jars with a characteristic set of personality traits typically found within the...

The link in this paragraph takes you to a link about an article on Tina Roe Skaar, who recovered due to Lightning Process!! - I also avoided going into detail as I knew that there is a lot of prejudice around ME. At the same time, every negative comment shows how important it is to talk about...

I've just signed up for it. Thanks for highlighting it @Sly Saint

@Gecko does the Sheffield Group have anyone they would recommend to apply for this?

The rationale is that some people with milder ME might be within the normal range on VO2 max or anaerobic threshold on day one, but then PEM kicks in and their results are lower at the second test, typically the next day. However people with other long-term conditions do just as well, on the...

I have seen occasional posts on FB groups for parents from around the 5-7 age, but it is now enlarged to looking at 5-11. No idea on overall incidence, don't expect this study to provide reliable info on that though!

"We reviewed the clinical records of 93 females with a diagnosis of ME/CFS who had undergone a 2‐day CPET protocol between June 2012 and November 2019."