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Please do start filling in the "survey". It is mainly noting down your research priorities in 3 boxes. You can put several questions in a box. You can also complete it more than once, though probably not weekly! There is one required question re confirmation that you have ME or CFS. Other...

Many of those initial studies on biomedical science are too small to be significant, they need funding to follow up promising results and see whether or not they still hold up

Looking at cognitive function, using Stroop-type tests, not questionnaires. Also repeating them to show "fade" over time. @Graham was looking into this @Joan Crawford, could you suggest the types/names of available testing that demonstrates impaire cognitive processing.

"The Level 1 Community COVID-19 MDT consists of 2 Allied Health Professional (AHP) Pathway Co-ordinators, 2 Physiotherapists, 2 Occupational Therapists, and 3 Consultants with specialisms in Rehabilitation Medicine, Respiratory Medicine and Cardiology; with specialist support from a Respiratory...

Later on in the Q and A from Toby "If I can come back to the earlier questions about editorial notes, I have been asking one of the team about that. I've been assured that, it is a known issue, the editorial note coming to the PLSs including in translating them, which is quite an important...

@Caroline Struthers question was asked "Plain Language Summaries can be accessed directly via the organisational website, Cochrane.org, if an editorial is posted on the main text to say a review is out of date or not used for decision-making, it is not visible in the PLS, users don't see it...

I wonder where I can include this as a question in the Virtually Cochrane conference?

Hi @Caroline Struthers, I was going to attend the "Right question, right methods, right now" session, but will switch to the plain language summary one instead and vote up your question. It is very easy (and free for consumers, ie us) to register. These sessions start at 15.45 today. There is...

Maybe @Jonathan Edwards could put GM in touch with Nigel Speight or provide a link with the radio program, was it File on 4, @Sly Saint.

Another "computer says no" answer. Thanks for complaining @FMMM1

Parents in the UK are too scared of being referrred to SS (social services) and accused of FII (Fabricated Induced Illness). They generally try to keep below the radar, avoid trials where possible, unless they are v new to ME and stay on the Clinics books to access letters for schools etc.

Looks as though this is usually a 30 second test. As many sit to stands as possible in the time, from a dining -type chair. Re funding. It's probably just from Chalder's NIHR pot.

I have registered as a consumer. I was surprised, but pleased that they actually asked my question in the Q & A at the end of the session: "Better health decisions. Using Cochrane evidence in shared decision-making." "So this one is really interesting. It's from Debbie Smith, thank you for...

Great to see a negative result published for a change.

What can be done to combat this in your view. So many paediatricians have taken on Crawley's view of ME, and are likely then to follow the BPS view on Long Covid. I did hear of one good paediatrician in Wales re ME. May be able to find their name. Dr Speight probably knows who is better or...

Officially yes, but your ideas for research, could be shared on the forum and might be submitted by others.

I can think of other words, mostly insuitable for the forum. The full letter per the MEA website is very interesting: "The MRC has recently started (with other research funders) a pilot of a new facility for academic researchers to share data via the Clinical Study Data Request (CSDR) web...

I wonder which neuromuscular conditions are included. I hope that there is no link with the ideas behind Wesseley's paper on adults with motor functional neurological disorders...

I agree @Ariel, but it shows how desperate the patients and families are to get the psych b******t repudiated. In the UK at least, we are not going to have a paradigm shift away from dysfunctional illness beliefs/deconditioning/fear of activity until this disinformation and flawed, if not...

Great analogy @Barry People want to be able to do more, whether physically or cognitively, but preferably both