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  1. M

    Let's talk wheelchairs and mobility scooters

    Apologies, this was not a serious suggestion. However we did have a much older friend with mobility problems whose vision was also going and I think people cleared out of his way pretty quickly when he headed down the road to the local supermarket! I also like the look of @AndyPandy's beach...
  2. M

    Pediatric chronic fatigue syndrome: current perspectives (Crawley)

    It would certainly be worthwhile having a summary of errors for Crawley Paediatric "papers" including: diagnostic criteria (if any) measurements of physical health, fatigue, cognitive processing, activity levels... size of sample duration and severity of illness etc There were at least two...
  3. M

    Pediatric chronic fatigue syndrome: current perspectives (Crawley)

    Thanks @Webdog, just what I needed to get me going on advocacy again this morning. Several emails drafted and groups contacted.
  4. M

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Hi @Andy I am happy to volunteer to attend the scoping workshop if the committee think I would be suitable
  5. M

    CBT- Jen Brea Twitter

    Unless your name is Donald Trump!
  6. M

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Another couple of gems from this guy! michael sharpe‏ @profmsharpe Feb 28 Prejudice is a great time saver. You can form opinions without having to get the facts. michael sharpe‏ @profmsharpe Feb 28 The hardest thing to open is a closed mind
  7. M

    Action for ME has joined S4ME

    The new Chairman and a couple of other Trustees seem very reasonable. I do not know how long they have been in post, except for the Chair. who was "appointed" at AGM in Autumn 2016. I agree that dialogue is good, and hope they do join in. I realise that for some, past actions are still too...
  8. M

    PIP Tribunal

    Z's husband is keen to make a formal complaint to DWP, which we may well do. I will also be sending a summarised version to Carol Monaghan/Laura Pidcock MPs. I am awaiting, with interest, the minutes from the last Forward ME meeting as the Chief Medic from Capita was going to be attending...
  9. M

    PIP Tribunal

    Hi Wonko, I am so sorry to hear this. I am sure that ATOS have ME down as a psychogenic illness, or MUS. On my friend's assessment report there were so many errors and they kept saying: "does not have a mental health condition, and no input for same". Part of my response was: "neither Z nor...
  10. M

    Personality and Perfectionism in CFS, 2008, Chalder & Deary

    Old Familiar, Deare and Chalder excelling themselves here. Scores highly on the "drivelometer". PwME "score more highly on neuroticism and unhealthy perfectionism" https://www.tandfonline.com/doi/full/10.1080/08870440802403863?scroll=top&needAccess=true
  11. M

    O'Dowd-Crawley early intervention study

    Has anyone seen this gem? https://www.tandfonline.com/doi/full/10.1080/08870440802403863?scroll=top&needAccess=true
  12. M

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Last year's second day of CMRC was closed initially to associate members, ie non researchers/medics, but they changed their minds nearer the time and opened the second day as well. I had hoped to go, but my back was very dodgy and then my son was starting Uni, the foll w/e. I have put it in the...
  13. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Isn't Mark Edwards who is already on CMRC PI on that same study too?
  14. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    EC is still on the list of confirmed speakers at ESPID 2018 http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.Wp70HujFLWV But it's not till end of May, so hopefully that can change. She was due to do an early ?breakfast session on ME as a 'Meet the Professor' slot...
  15. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Oh NO! But CP was not at the meeting
  16. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    So, Chris Ponting will be deputy Chair from April They are talking about the BACME conference and BACME joining forces with CMRC, do they know that Per Fink is talking at BACME/
  17. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I think Neil Harrison gave a talk at IiME a few year ago, but his latest study in Sussex has raised some doubts re his aims. https://www.bsms.ac.uk/about/contact-us/staff/dr-neil-harrison.aspx
  18. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Here are minutes from a meeting in F 2018eb https://www.actionforme.org.uk/uploads/images/2018/03/cmrc-draft-minutes-060218.pdf
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