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Awesome!

Some good points made here. But the situation is much simpler than people make it out to be. It's not "difficult" to differentiate, it's impossible. Even the most "eminent" experts on psychosomagic illness cannot make the difference and only argue out of lack of evidence mixed in with personal...

It's a simple reminder that we will hold Cochrane up to this. The process that created the last reviews was completely opaque and highly secretive, entirely lead by people who are not actual subject matter experts. So a process that includes open dialogue with patient organizations would be a...

Wow. This picture speaks way, way more than 1,000 words and most of those words are profanity. As fraud goes, this makes the MMR paper and everything that followed it seem honest and good.

Definitely not a dumb question. It's a simple concept but so profound it's hard to grasp. Not sure I do well enough to explain it but I'll try. It's assuming that the presence/addition of something will not change its outcome and measuring deviations from that expectation. It gives a measure of...

Weird, it's been set to private.

For which The Lancet, Richard Horton and Andrew Wakefield are responsible, behaving exactly the same way they did as with PACE. Not exactly a good idea to use that example but carry on regardless. Similar thinking to today's report about Eysenk's research being faulty, who promoted the belief...

This is a weird paper. Basically just listing a few cherry-picked services and concluding, without much supporting facts, that more would be useful. It's at least accurate in saying that there is an unmet need but not on the basis of a problem that needs to be solved and rather as a solution...

Merged thread A glimpse into our inevitable future. Eysenk's research, the cancer personality stuff, has been discussed a few times here and there but there isn't really a proper thread for it. His research seems to be of similar quality and framing than the rest of the psychosocial stuff on...

I have no idea what is the point or aim here. The "BPS perspective" is strictly from the point of view of BPS practitioners and so not particularly relevant to understanding what patients need, which is self-evident but contradicts the BPS perspective so it ends up like intertwined gears that...

A Twitter user pointed out this interesting tidbit: survivors of Ebola seem to display similar symptoms to ME. This isn't particularly new but potentially very interesting. Is it closer to ME or PVFS? Are those different other than a better prognosis for the latter? Not sure enough time has...

This is well-known problem in many areas, not just medicine. That it is so well-known and still allowed to be used is frankly malfeasance. In the early 2000's, the US education system made a big shift towards standardized testing in order to determine allocation of funds for schools. School...

I have developed ME after eating strawberries as a kid. I also developed ME after completing an associate degree at university. There were birds in the sky before I contracted ME. There still are. Clearly there's a link there, too.

Yep. This is why the update is meaningless and will not change anything for us. The recommendations stand. Nobody cares about the details.

Oh we will get to that. Just not yet because it would be too easy to find medical experts arguing we are delusional. And we're not organized anyway. It will definitely get to that, but right now we are guilty until proven innocent and it's too unusual to work out. It's one of those cases that...

:banghead:

Unfortunately medicine is pretty much sovereign and its institutions can do whatever they want in this regard. They can and do simply declare us, without evidence, to be raving lunatics and that is all that is needed to treat us like second-class citizens, deprived of fundamental human rights...

Thanks! I added them to my post as well for convenience. Some of those surveys are closing in on 2 decades. I hope someone has them safeguarded. I have no doubt they will matter, by sheer mass of evidence that this was always morally bankrupt.

Excellent! I have not seen any justification for those from Cochrane in the review and commentary. Did I miss them? Every single one of those points is damning. Combined they frankly amount to malpractice, "justified" or not. Simply describing the problem is not a proper justification. Neither...

I'd say he would be impressed. Horrified, but impressed nonetheless.