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It seems entirely framed around the impact it has on physicians and nothing on the patients themselves, barely an administrative concern. It's frankly very narcissistic. This obsession with trauma, especially childhood, is unhinged. Most people did not have a violent or abusive childhood but...

They know exactly what they're doing. They operate out of beliefs, not science.

Well, the PACE team pulled off dropping all objective measurements for the treatment arm built on an assumption of deconditioning based on the written statement that in their opinion the participants were reasonably active and so there was no need to measure their activity. Both deconditioned...

The "wellness journey" line seals it. Anyone confusing fatigue for ME can be safely ignored and told to go away and never come back.

A sub-zero sleeping bag will more than do the trick. Some are as good as -45C. Will likely not be found down south but from any online store in the northern states they should be easy to find, even from military surplus. For the tent itself definitely nothing better than reflective covers, the...

So, safety is confirmed. Moving on to efficacy in blinded trials? Effect seems to be minimal, though. As in it relieves some but doesn't do much to elevate function. Still better than, woah, TAU, which is now CBT-GET. The thing about setting a standard that the lowest possible subjective...

The incompetence of every UK medical journal in promoting harmful BPS pseudoscience certainly suggests so. Aaron Swartz literally died for this. As many in the ME community do, just on the other side of things. The current model is even more broken considering how the ME saboteurs seem to all...

Well, that's the PACE model: make shit up, break everything, provide no benefits whatsoever, give yourself a perfect grade. That's just the BPS wayTM.

More whitewashing. Still listed under research. Retroactive exemption from having failed basic (optional) requirements. The original article doesn't appear to have been updated so one would have to look for the correction to find it. This is all a sham. Zero respect for the most basic...

Yes! I mentioned home visits here but for most circumstances telemedicine would work just as well. I am skipping going to see my GP this year because it's frankly an ordeal and doesn't make any difference. However a short video chat would probably work just as well. Not much has changed since...

At some point it'd be really great if people, especially in medicine, stopped using the same tired old trope of people seeking attention and magical benefits of pretending to be sick when it is shown over and over again how it completely defies all common sense, that it's not even worth the...

Have they ever met sick people? How are people who work in this field unaware that there are sick people out there who are too ill to leave the house? They don't understand either that this does not magically make those people less sick and thus "motivated" to go to the clinic? Or just don't...

Timely link I found on the CFS sub-reddit: https://people.com/health/extreme-dry-eye-left-fox-news-shannon-bream-suicidal-i-was-in-pain-all-the-time/. Eye pain of a kind intense enough some patients suicide. Told she was hysterical. Found a diagnosis herself through forum. Treatment worked, not...

There really is a shocking number of physicians out there who put their personal opinion far above the lives of millions. That's definitely not optimal. No wonder so little progress is being made when decades are wasted on insisting that it's the patients who are wrong.

That's a blatant lie. No excuse for this. It's a grotesque lie.

That literally contradicts the CBT model, that we need our thoughts and behaviors changed. Wanting to change is not consistent with having to change behavior. It undercuts the whole model as fully as dropping actimetry because PACE participants are reasonably active while the very model is...

Over 2 decades and still only ever have anecdotes to show for it. Zero refutation of all the evidence against, always trotting out anecdotes and personal feelings, dangling some ridiculous hope that it may just work eventually. 2 decades used in practice in many countries. Thousands and...

Awards. Recognition. Fame. Self-serving ego stroking. All of which are more important that literally millions of lives. People involved in these psychosomatic ideologies seem to think of us as mere statistics, not much different than lego figurines. They have built paper-thin caricatures of who...

Especially as the most likely to be prescribed drugs will be antidepressants and even most psychiatrists are either oblivious or in denial about the severe side-effects and withdrawal. ADs have their use but they are already prescribed irresponsibly as it is. This will only grow a problem that...

Yes, this is critical. The "validation" that sick people need is not for ourselves, it's for everyone else. Modern societies have a social contract in which we defer all medical expertise to a single profession. Included in this contract is the determination of who is sick and who isn't. When...