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  1. rvallee

    What can we learn from the Post Office scandal publicity (including TV)?

    Yup. But it can work both ways, e.g. Afflicted. Not really a dramatization, but it doesn't claim to be a documentary either and for that reason they could do the worst possible framing and get away with it, even after lying about not being hostile to the participants.
  2. rvallee

    New York City launches 10K participants study into Long Covid

    NYC To Study Long-Term Outcomes of COVID-19 Among New Yorkers https://www.nyc.gov/site/doh/about/press/pr2024/nyc-to-study-long-term-outcomes-of-covid-19.page The Department of Health and Mental Hygiene is launching a multi-year research study of long-term outcomes among adults infected with...
  3. rvallee

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Even though it has failed miserably despite being used, without evidence, for 4 years, and even though this is obviously not deconditioning, if only for the simple fact that deconditioning does not fluctuate, and that most pwME or pwLC have never been extensively bed-bound. We are in an absurd...
  4. rvallee

    MSD Manual (US): Chronic fatigue syndrome - updated Apr 2020 and Sept. 2021

    Everything they recommend is unproven or disproven. Opinion-based medicine yet again. They might as well have put blood letting in there. To do a 2023 update with this BS is a testament to the widespread regression of medicine in everything but advanced biomedical research. The rest is either...
  5. rvallee

    News from Scandinavia

    By function and definition, not only is "the placebo" the least effective treatment possible, since every single approved treatment has to do better than "placebo", many treatments that don't work did better than placebo, so the placebo is even less effective than treatments that don't even...
  6. rvallee

    Dr. Anthony Fauci on Long Covid and ME/CFS

    Yes, and not only for the slap in the face, but because it will make the research worse off and take longer to achieve anything for a terrible reason. COVID is not the only pathogen that causes this. This is known, and it means something. It means that there is something in common to several...
  7. rvallee

    Sicily Evidence-Based Healthcare Conference 2023, reports by Hilda Bastian

    Well, Cochrane has certainly provided a textbook example of how not to do that. Do the exact opposite of what they have been doing relating to us, and that's as strong a foundation as you can get. Other than just shutting down in disgrace and admitting this was all a giant mistake. But the...
  8. rvallee

    FOIA denied CFSAC dissolution 2018/56 responsive records

    Legitimate requests are usually rejected, makes the demands more onerous and difficult to pursue, and often only succeed after years and multiple attempts. There are likely grounds for appeal, it would take someone very familiar with the process, however. There's some method to the madness, but...
  9. rvallee

    Review Conceptual foundations of acetylcarnitine supplementation in neuropsychiatric long COVID syndrome: a narrative review, 2024, Helbing

    Oh, that's Alcar. Been taking for months. It may make a small difference. Not really significant.
  10. rvallee

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    More nonsense from Carson. Either that or he is ignorant that most pwME or LC don't extensively bed rest all the time. It's not like it's hard to find data about what % are severe enough to be house- or bed-bound. There is no need for that except for a cohort of severe ME/LC patients, and even...
  11. rvallee

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Yeah this is just normal these days. Medicine rejecting the reality of chronic health problems following COVID has allowed for the antivaccine crowds to completely fill the space. This will have huge consequences, but to be fair it was always obvious that it would. This is why public health...
  12. rvallee

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Most of the framing, and in fact many headlines, has been around "intense exercise", so I don't think this will change anything to their belief system, they will simply insist that they were always right about the need for a slow, gradual build-up in activity, and how their own writings advising...
  13. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Why the past tense? Nothing's changed. ME sufferers used to be gaslighted in the past, we still are, but we used to be, too. Mitch Edberg-based medicine. Although, there are no lockdowns and the whole wave is happening with silence all around, the public in general has tuned out entirely. The...
  14. rvallee

    COVID-19 impairs oxygen delivery by altering red blood cell hematological, hemorheological, and oxygen transport properties, 2024, Stephen C. Rogers

    Something I hadn't seen for a while, but it has never been explained why COVID makes some people highly hypoxic, to a point far below the usual "danger" level, without any explanation. What was called "happy hypoxia" in the early days, which, wow, Orwell would be really weirded out by. I don't...
  15. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    What a weird letter. Mostly overlooks their past, uh, "work", makes much about cancer fatigue, for some reason, and a mockery of talking about representing some groups of patients, which they do not. As if writing a widely condemned letter filled with nonsense is notable work. Obviously these...
  16. rvallee

    News from Germany

    Has this been posted before? It's from 2022, but searching for it doesn't find anything. The translated title is appropriately biting. Long Covid and ME/CFS - crime story about an illness...
  17. rvallee

    Increased risk of functional neurological disorders following SARS-CoV-2 vaccination 2023 Pilotto et al

    Dismissing the consequences of vaccine reactions is going to be one of the biggest own goals in history. The COVID vaccines are especially likely to cause bad reactions, and headaches are a pretty common side effect. It's bad enough to have so thoroughly depressed uptake by constantly minimizing...
  18. rvallee

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    Problem is... who would give this attention? Psychology. So it's really not going to happen, in a "who will police the police?" kind of bind. Same with psychiatrists. If they examined their own behavior towards us, all the harm that they cause, it would be hard not to see a high level of...
  19. rvallee

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    Probably just a reflection of the fact that the vast majority of published research is biomedical and doesn't bother with the wishy-washy BPS stuff. So it's technically correct, but still wrong. Because only the minority of psychobabble pseudoresearch has any effect on the real world, and in the...
  20. rvallee

    New Alcohol Sensitivity in Patients With Post-acute Sequelae of SARS-CoV-2 PASC: A Case Series, 2023, Eastin, Bonila et al.

    Ah, yes, ye old "I'm not aware of it and therefore it doesn't exist". Then again, it's somewhat true that the medical literature has very little on it, but it only reflects to how it is severely lacking, since this has been widely reported for decades, and yet again from the start with Long...
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