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Last summer BBC had an article on Pelvic Congestion Syndrome. I had never heard of that before, and neither had my doctor, but then dr. Peter Rowe mentioned it briefly in his recent lecture for FNIH titled: Observations on long Covid through an ME/CFS lens (at approximately 13. minutes) by the...

Trial by Error by David Tuller: Q-and-A with Natalie Boulton, Director of "Dialogues for a Neglected Illness" quote: I recently asked Natalie Boulton some questions about the project and its impact. Here is an edited version of that exchange:

Salon The kids are not alright: Data suggests 10% of children with COVID-19 become "long-haulers" No mention of ME, but dr. Peter Rowe is among quoted experts: "No one is certain exactly how many people who've had COVID-19 end up being long haulers," wrote Johns Hopkins University School of...

Francisco Westermeier, one of the researchers, has written a summary on Twitter:

Another thing to keep in mind regarding today's Long Covid report from the Norwegian Institute of Public Health is that they've been a voice for as few restrictions as possible throughout the pandemic and only a few days ago the director said they now want people to get infected. Long Covid...

The Norwegian Institute of Public Health has today published a report about Long Covid. One of the authors are KG Brurberg who also co-authored the Cochrane review on ME and graded exercise therapy. The report is peer reviewed by among others research director Signe Flottorp, who is very...

Opinion piece by Jennie Spotila in The Philadelphia Inquirer: I have a chronic illness. During COVID, isn't my life worth protecting? Quote: Almost 30 years ago, I got sick with a virus that led to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — a debilitating neuroimmune disease...

Professor Kunst comments to Garner

New blog post from Nina E. Steinkopf in English translation. This time about Lightning Process which she compares with classical red flags of religious sects. Is the Lightning Process a sect?

Dr. Khan is looking for journal articles regarding minimising Long Covid.

Welcome to the forum, @Anne Kielland ! :) It's great to see you here and lovely that more researchers are finding their way to the forum. It's very kind of you to offer to answer questions and to engage with the patient community, also outside of Norway. I've seen some talks about the research...

continued (and with a small mention of ME):

prof. Iwasaki with summary on twitter

Welcome to the forum, @jornt_h It's an interesting question you are asking, and I hope members here can help you. What are the developments in Germany, for instance? @Michiel Tack or others, do you know...

Stuff The narrative of Omicron as a 'milder' variant is dangerous, given what we know about long Covid, experts warn quotes: Otago University’s Emeritus Professor Warren Tate is a biochemist who has been studying myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for...

RollingStone What the Long Covid Numbers Aren't Telling Us Quote: Although the current definitions of Long Covid are incredibly broad, before they existed, there was even less certainty about what “counted” as Long Covid among patients, researchers, and medical professionals. “Long Covid means...

Just saw psychology professor Jonas R. Kunst share this article on twitter commenting that Russian flu was also associated with inflammatory conditions and fatigue reminiscent of Long Covid. The article is paywalled, so don't know if this is prof. Kunst's thoughts, or if the article is about...

New Scientist Strongest evidence yet that MS is caused by Epstein-Barr virus quote: It has long been suspected that the common Epstein-Barr virus can trigger multiple sclerosis (MS). Now, a study of 10 million military personnel in the US has shown that virtually every case of MS is preceded by...

The Norwegian Directorate of Health announced on Facebook today that they have collected some tools and courses that can be useful for those who suffer from after effects of Corona. They link to an official, public site about health which says to deliver updated information of high quality...

@Dakota15 provided a link that opened the article: https://www.thetimes.co.uk/article/b48fe264-72e6-11ec-89e9-22d3d9c31ba2?shareToken=0300a38a426b1cd859f4d8f722938150 The twitter thread was a good summary of a good article, until the services from a "pacing coach" was mentioned.