JOSPT Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 3: "Energy System First Aid" for People With Postexertional Symptom Exacerbation by Todd E. Davenport et al
Summary
First aid is an important part of rehabilitation. Energy system first aid for people...
No mention of ME, but on post infectious disease in general
Nature Pandemics disable people- the history lesson that policymakers ignore
quote:
There was a tendency among medics to play down long COVID to begin with. Now, thanks in large part to the voice that ‘long-haulers’ found as they came...
New blog post from Naomi Whittingham. Reading her texts is like a good therapy session.
What It Means to Be Clinically Vulnerable in a World of Covid
quote:
The level of restriction endured by everyone was punishing, and I’m glad that, for the majority of people, such hardship is now at an...
Thanks for letting me know. It works for me, but if others get an error page as, well, let me know and I'll try to fix the link
ETA: No you're right! I just misunderstood which link you meant. Have fixed!
Moved post
International Journal of Molecular Sciences
Implication of Covid-19 on Erythrocytes Functionality: Red Blood Cell Biochemical Implications and Morpho-Functional Aspects by Annamaria Russo et al
Abstract
Several diseases (such as diabetes, cancer, and neurodegenerative disorders)...
Moved from the general long covid thread
Nature reviews immunology Lessons from Long COVID: working with patients to design better research by Nisreen A. Alwan
quote:
Why is the research question framed in such a way that a low accuracy laboratory test is to be believed — as a default — more...
I brought this Medscape article to my doctor when asking to try LDN. It sums up a bit of the current knowledge about ME and LDN, but doesn't conclude regarding efficiency. However, I hope it gave my doctor a bit overview of the theme. He agreed to try...
Thought others too might find it interesting to revisit Kjetil Gundro Brurberg's text for "The Mental Elf" in 2017. He criticised the Journal of Health Psychology's edition on PACE (where he coauthored an article that got rejected) and an editorial by dr. Geraghty.
quote:
The take home...
Article in Cell Reports Medicine from Bergen, Norway about Long Covid. The article discusses among other relationship between Long Covid and other post-infectious syndromes and mentions CFS. One of the authors, Nina Langeland, has researched an outbreak in Bergen in 2004 of the parasite Giardia...
Kyodo News FEATURE: Reduced brain function, immune disorder a possibility of "long COVID"
Quote:
The center has long studied chronic fatigue syndrome, which causes various symptoms such as extreme fatigue and body aches. The presence of autoantibodies that disrupt the function of autonomic...
This article in Dagsavisen says that Eva Skovlund (who used to do research with prof. Wyller) is replaced with a Jo Røslien, both professors in medical statistics. He's been a guest lecturer at King's College London and has an honorary title at the medical faculty in Aalborg, Denmark.
Yes, you are right!
Nina E. Steinkopf wrote the following blog post with correspondence from The Research Council of Norway (Forskningsrådet) setting a deadline for ethical approval by December 2022...
Tuller comments on Twitter:
A whine of anguish from people confronting increasingly successful opposition to the ideological perspective they have been promoting for a long time. The arguments about patients and NICE ignoring the evidence are classic Freudian projections.
I read between the lines that they've tried to get an article published, but were asked to submit an opinion letter instead.
ETA: But it's nicer to say that the editors invited them to write, and I already see LP coach Live Landmark refer to the comment as published in the Lancet (as if it was...
The tabloid newspaper Dagbladet has written an article about the Lancet comment. It's paywalled, so here are some translated quotes::
Title: Fear ME sufferers will lose important treatment
Research director Signe Flottorp of The Norwegian Institute of Public Health believes the changes in the...
Medscape Promising Leads to Crack Long COVID Discovered
Quote:
Other investigators are proposing "immune exhaustion" in long COVID because of similarities to chronic fatigue syndrome, Hornig said.
"It should be 'all hands on deck' for research into long COVID," she said. "The number of...
This email from 2020 from Signe Flottorp, research director at The Norwegian Institute for Public Health, resurfaced today on Twitter. I had forgotten it.
It's sent to Miek Jong, Head of Norway's National Research Center in Complementary and Alternative Medicine (NAFKAM). NAFKAM defined...
The Lancet New NICE guideline on chronic fatigue syndrome: more ideology than science?
Signe A. Flottorp, Kjetil Brurberg, Per Fink, Hans Knoop, Vegard B B Wyller
Article is paywalled other than this text (references removed):
The National Institute for Health and Care Excellence (NICE) in the...
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