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  1. Kalliope

    JOSPT: Lessons from ME/CFS for Long COVID - 4 part series, 2022, Davenport et al

    Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID: Postexertional Symptom Exacerbations is an Abnormal Response to Exercise/Activity Authors: Todd E. Davenport, Staci R. Stevens, Jared Stevens, Christopher R. Snell, J. Mark Van Ness Quote: Prolonged symptoms after...
  2. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    No. Just general about fatigue, headache etc.
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm a participant in a Norwegian Covid-19 study based on large surveys. They too have started to include questions concerning Long Covid and I tick several of the symptoms for Long Covid, even though I've never tested positive for Covid-19. In these surveys it's possible to add your own text, so...
  4. Kalliope

    Nature - Pathological sequelae of long-haul COVID by Mehandru, Merad, 2022

    Abstract: The world continues to contend with successive waves of coronavirus disease 2019 (COVID-19), fueled by the emergence of viral variants. At the same time, persistent, prolonged and often debilitating sequelae are increasingly recognized in convalescent individuals, named...
  5. Kalliope

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    Glad you could follow the lecture in Norwegian as well. I feel their paper from last spring on their hypothesis on disease mechanisms for ME drowned in the pandemic and never received the attention it deserved. Otherwise I'd think some journalists would have gotten interested and we might have...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Amy Proal/PolyBio research center: "Interview with Dr. Akiko Iwasaki "An overview of her research on LongCovid and ME/CFS"
  7. Kalliope

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    My pleasure. The translation was done very quickly during watching the lecture for the first time and with brain fog. I tend to loose a lot of vocabulary then, but hope at least main messages came through. He says he can't find any of the typical tissue damage in ME patients which you would...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Tyee Ed Yong Explained the Plague Expertly. Now, 'Magical' Animals quote: You’ve spoken to countless people for your work — scientists and public-health experts, doctors and health-care workers, COVID long-haulers. Since you began this coverage two years ago, what are some of the most...
  9. Kalliope

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    The Norwegian ME Association organised an ME conference last November in Oslo. They have now uploaded the lecture professor Øystein Fluge held on disease mechanisms in ME/CFS. I thought the paper he and his team published last spring was difficult to understand, and have missed a lecture for us...
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This was a good article. Seems another one is in the making: Tweet from It'sME(Jaime)@exheedhergrasp1 The author of this article, Frank Diamond, interviewed me today -- probably coming out next week. He concluded with, "good luck in the fight." Grateful for people who are invested in getting...
  11. Kalliope

    United Kingdom: Independent SAGE

    Thank you! I must have gotten something wrong. Will correct.
  12. Kalliope

    United Kingdom: Independent SAGE

    @Robert 1973 Your question was asked today. At about 51 minutes: ETA: correct time
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    BBC Inside Science Predicting Long Covid, and the Global Toll of Antimicrobial Resistance From the description: Prof Onur Boyman, Director of department of Immunology at University Hospital, Zurich, this week published a paper in the journal Nature Communications that presents a way of...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Danish news about health care workers who suffers from Long Covid being of risk of becoming fired. Wonder who they plan to replace them with.. TV2 Direktør om syge ansatte: - Ulykkeligt, men vi kan blive nødt til at afskedige google translation Director about sick employees: - Unfortunate, but...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Daily Mail Long Covid expert says the world is in 'deep trouble' quote: Dr Leonard Jason is a psychology professor at Depaul University that works with long Covid patients. He told DailyMail.com that the potential of the Omicron wave causing the condition in so many survivors could have severe...
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Great interview with Jamie Seltzer Society to Improve Diagnosis in Medicine Understanding ME/CFS and Long COVID as Post-Viral Conditions Quote: The experience of patients whose COVID-19 symptoms persist for four weeks or more—Long COVID or post-COVID syndrome—has led to renewed interest in...
  17. Kalliope

    Pelvic Congestion Syndrome

    Thanks. I did not know that this seems to be a common phenomenon also outside of this patient group. I'm afraid you're probably right in that assumption :( Oh my, that' a lot. So glad to hear endometriosis treatment has helped, and hope you didn't have to go very long with a lot of pain before...
  18. Kalliope

    Development and testing of new vaccines against EBV and other viruses

    Cambridge Independent Cambridge ME Support Group chair welcomes Moderna vaccine trials for Epstein-Barr virus The article also mentions the updated NICE guidelines. Quote: The chairman of the Cambridge ME Support Goup, Mark Harper, has welcomed Moderna’s announcement of preliminary trials for...
  19. Kalliope

    The Effects of Messaging on Long COVID Expectations: An Online Experiment, 2022, Mills et al

    Posts about the preprint of this paper that were on the psychologising Long Covid thread have been merged with the new thread on the paper now published.
  20. Kalliope

    Podcast The Feel Good Café: The Energy Envelope Theory for Patients with ME, by Prof Leonard Jason

    Description: The Feel Good Café In this podcast episode, prof. Leonard Jason discusses how myalgic encephalomyelitis became chronic fatigue syndrome. He also covered the difference in fatigue someone with depression may experience in comparison to patients with ME. He then talked to me about the...
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