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  1. Wyva

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    I think this is the study the article talks about, it is Norwegian, hm... Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al
  2. Wyva

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Merged thread Has some sort of full-scale attack started or are these just coincidences? Very problematic article: The National Institute for Health and Care Excellence (NICE) in the UK published a new chronic fatigue syndrome guideline. The previous NICE 2007 guideline recommended cognitive...
  3. Wyva

    Improving images used to depict ME/CFS

    These are not just typical stock photos but pictures taken by a German ME/CFS organization, you can find them in the press photos section on their website. I use these photos too sometimes on my page. :) I don't know how these ended up in those articles but maybe some advocacy work was involved...
  4. Wyva

    Contacting researchers

    So in the end I sent a message similar to what you suggested. In short: - thanked them for drawing a parallel with ME/CFS in their studies - asked them if they are planning to research ME/CFS more or research ME/CFS along with long covid - told them that patients are extremely grateful for any...
  5. Wyva

    Risk factors and abnormal cerebrospinal fluid associate with cognitive symptoms after mild COVID-19, 2022, Apple et al

    The study is explained in this article: Cerebrospinal Fluid Offers Clues to Post-COVID ‘Brain Fog’ Over-Stimulated Immune System May Be Impetus to Cognitive Symptoms, UCSF-Led Study Shows
  6. Wyva

    Risk factors and abnormal cerebrospinal fluid associate with cognitive symptoms after mild COVID-19, 2022, Apple et al

    Abstract Cognitive post-acute sequelae of SARS-CoV-2 (PASC) can occur after mild COVID-19. Detailed clinical characterizations may inform pathogenesis. We evaluated 22 adults reporting cognitive PASC and 10 not reporting cognitive symptoms after mild SARS-CoV-2 infection through structured...
  7. Wyva

    Serum Level of Anti-Nucleocapsid, but Not Anti-Spike Antibody, Is Associated with Improvement of Long COVID Symptoms, 2022, Varnai et al

    This is a new paper from the same Hungarian team who published this one last year: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID (...), 2021, Molnar et al Again, they mention CFS: Chronic fatigue syndrome (CFS) is...
  8. Wyva

    Serum Level of Anti-Nucleocapsid, but Not Anti-Spike Antibody, Is Associated with Improvement of Long COVID Symptoms, 2022, Varnai et al

    Abstract Background: Long COVID is a condition characterized by long-term sequelae persisting after the typical convalescence period of COVID-19. Previous reports have suggested the role of an unsatisfactory immune response and impaired viral clearance in the pathogenesis of long COVID...
  9. Wyva

    Contacting researchers

    So there was this study a couple of months ago in Hungary: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID (...), 2021, Molnar et al You can see in the thread that the researchers also made comparisons with ME/CFS and...
  10. Wyva

    Toronto scientists are trying to crack one of COVID’s biggest mysteries: Its impact on the brain

    Yes, a lot of them, it is quite a common symptom. Here is the NHS website mentioning it for example: https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/
  11. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Two articles this time: First: Prime example of how little these people understand what's going on and I'm only sharing this because it's so ridiculous that I don't know if I should laugh or cry: Many struggle with anxiety, sleep disorders, but also with the weight of grief and trauma - Covid...
  12. Wyva

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Cancer is a great topic for this. I get the impression that here in Hungary BPS people focus way more on cancer than on us. They just published an onco-psychological guideline here, which I kind of skimmed through and realized that biopsychosocial is an outdated term now, instead it is now...
  13. Wyva

    Covid-19 vaccines and vaccinations

    It is possible to get the 4th shot here now. I'm kind of thinking about it, as I had my third one back in August. But I read all kinds of conflicting things about it, so I'm not sure if it is really worth getting it. Is it useless against omicron and the possible later variants? Does it still...
  14. Wyva

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    I think he means this (from a different preprint paper - EP=Pretorius): Yes there is potential Competing Interest. MK is a non-executive director and shareholder of Gknowmix (Pty) Ltd. EP is the managing director of BioCODE Technologies. The other authors have no competing interests to declare...
  15. Wyva

    Chronic Fatigue and Postexertional Malaise in People Living with Long COVID: An Observational Study, 2022, Twomey et al

    If someone is interested, the preprint version is available in full: https://www.medrxiv.org/content/10.1101/2021.06.11.21258564v2.full-text
  16. Wyva

    Is there any research into vaccinations being a trigger for ME/CFS?

    There was this study last year: Infections in temporal proximity to HPV vaccination and adverse effects following vaccination in Denmark..., 2021, Krogsgaard et al. It is not simply about vaccination though but it examined vaccination and infection happening relatively close to each other in...
  17. Wyva

    Multiple Early Factors Anticipate Post-Acute COVID-19 Sequelae, 2022, Su et al

    This study didn't only involve people with mild covid infections but many were hospitalized. There is a New York Times article where some experts comment on it, including Avindra Nath: https://www.nytimes.com/2022/01/25/health/long-covid-risk-factors.html But the thing is that it mentions...
  18. Wyva

    Multiple Early Factors Anticipate Post-Acute COVID-19 Sequelae, 2022, Su et al

    Highlights Longitudinal multiomics associate PASC with autoantibodies, viremia and comorbidities Reactivation of latent viruses during initial infection may contribute to PASC Subclinical autoantibodies negatively correlate with anti-SARS-CoV-2 antibodies Gastrointestinal PASC uniquely present...
  19. Wyva

    Big improvement after period of dry weather?

    Another thing for whoever is interested in this topic: Whenever the weather is killing me, I see a whole bunch of people in the long covid group complain about the same. Whatever this is, some of the long haulers have it too. I also believe this is probably quite dependent on geography/climate...
  20. Wyva

    Big improvement after period of dry weather?

    I'm not sure we have the same issue (I'm honestly never sure with ME/CFS) but I'm severely affected by weather changes and I can at least tell you my story. So to begin with: even before ME/CFS weather fronts affected me, however, only in a normal way, meaning that they only very slightly...
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