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  1. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid has shed new light on ME (chronic fatigue syndrome), once disparagingly dismissed as 'yuppie flu' – Professor Eleanor Riley Opinion piece: Professor Riley gives a brief but very good summary of ME/CFS. For us, there's not much new information there but it's good to see such articles...
  2. Wyva

    Open Research study on activity patterns and autonomic dysfunction, Stony Brook Medicine

    I saw this in a SolveME Facebook post: Study Alert: Our friends at...
  3. Wyva

    Long covid—mechanisms, risk factors, and management, 2021, Crook et al

    Abstract Since its emergence in Wuhan, China, covid-19 has spread and had a profound effect on the lives and health of people around the globe. As of 4 July 2021, more than 183 million confirmed cases of covid-19 had been recorded worldwide, and 3.97 million deaths. Recent evidence has shown...
  4. Wyva

    Covid-19 vaccination experiences

    Sorry for hijacking the thread again but the antibody saga unfortunately continues! From the previous episodes: very low number of antibodies in a private lab result (blood test, antibodies against S spike protein). A similar test at Semmelweis University was clearly positive. I'm in the same...
  5. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Call for proposals of the Hungarian Academy of Sciences for the submission of high-risk applications for research on post-COVID phenomena 2021 The Hungarian Academy of Sciences is planning to spend 400 million forints (about 1.1 million euros) over two years on research on "post-covid...
  6. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long COVID: A ‘mysterious’ syndrome with ‘no clear pattern’ of symptoms Quite a long article, with several doctors/researchers sharing their opinion on long covid. In addition, this is what Sandra A. Fryhofer, MD, chair-elect of the AMA (American Medical Association) board of trustees said...
  7. Wyva

    News from Doctors with ME

    Job: We are seeking remote volunteer Science Writers who are based anywhere in the world and can synthesise research articles into summaries, by selecting impactful wording and quotes that share the primary take-home points. These headline points must catch the eyes of our time-scarce...
  8. Wyva

    United Kingdom: NIHR Long Covid research funding decisions 2021-2

    Remember that recent study about LDN from the NCNED team? Looks like we have some groundbreaking research never done before ever week now. :p
  9. Wyva

    Comic: But........ you did it before by Mahli Quinn

    "A wonderfully illustrated comic to explain Myalgic Encephalomyelitis/Encephalopathy (M.E) also known as Chronic Fatigue Syndrome (CFS) to other people." The video is 6 minutes long but easy to understand. Posted by ME Association. Full description on YouTube, below the video. I chuckled a...
  10. Wyva

    NLS Pharmaceutics Announces the Appointment of Eric Konofal, M.D., Ph.D. as Chief Scientific Officer (ME/CFS is mentioned)

    This is a press release from a small Swiss pharmaceutical company. I'm sharing it because the newly appointed chief scientific officer said: "Our lead product candidate, Quilience®, is an exciting technology that we discovered has partial orexin-2 binding activity, and therefore, offers...
  11. Wyva

    ..investigation of nutritional intake & supplement use in Australians with [ME/CFS] .. implications on health-related QOL, 2021, Weigel et al

    I'm not sure if this is due to me being mild or not, but I don't have any caffeine intolerance (alcohol intolerance is the only one I have due to ME/CFS) and I definitely use coffee all day to keep me running. It doesn't always work and even when it works, it doesn't resolve the problem, only...
  12. Wyva

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    New cases is Vienna: "Since Joe Biden took office, about two dozen U.S. intelligence officers, diplomats, and other government officials in Vienna have reported experiencing mysterious afflictions similar to the Havana Syndrome.", full article...
  13. Wyva

    Covid-19 vaccination experiences

    My antibody results from Semmelweis University are back (antibody against S protein, with a different range of values this time): the minimum is 0.8 U/mL, mine is 94.13, so this is a good result finally. The university says their testing is probably more accurate than that of the private labs...
  14. Wyva

    Voices of Recovery website (Lightning Process promotion)

    This is probably her (London, Manchester, fibromyalgia, rehabilitating long term health conditions, mindfulness, bowen etc): https://www.breathworks-mindfulness.org.uk/anjali-chatterjee Edit: Peter Valaitis was the director of a million companies, all for a very short time (often only for a...
  15. Wyva

    AMA Journal of Ethics: What to do when symptoms are difficult to see or measure

    Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can cause patients with a wide variety of conditions—including chronic fatigue syndrome, endometriosis, fibromyalgia, many psychiatric illnesses, multiple...
  16. Wyva

    Covid-19 vaccination experiences

    Another chapter in the covid vaccine antibody test saga: Semmelweis University has also published the antibody results of those people who had previously tested negative somewhere else (after Pfizer, Moderna, AstraZeneca, Sputnik, Sinopharm - so no Janssen this time). Their project was to retest...
  17. Wyva

    News from Doctors with ME

    Now people can apply to be a member: https://doctorswith.me/home/join-us/ Also, you can now read the code of ethics and conduct and application policy: https://doctorswith.me/the-dwme-code/ "We are thus required to reject applications from individuals who risk breaching these obligations. In...
  18. Wyva

    Covid-19 vaccination experiences

    Article about the results of the free antibody testing program in Budapest for people over the age of 60 (sparked by the Sinopharm controversy, but other vaccines - Pfizer, Moderna, Sputnik, AstraZeneca, Janssen were tested too). n=1760 It says: "Although the 1760 evaluable studies - in the...
  19. Wyva

    Covid-19 vaccination experiences

    @FMMM1 Thanks! I'm not really worried about the AZ vaccine and its effectiveness in general but rather about my own low antibody levels after the vaccine. There's an update actually: due to the controversy around the negative test results for some of the Sinopharm vaccines, it has been offered...
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