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I've found another decent article. This particular page is a very popular health website for the general public and from what I've seen, even their previous (few) articles on ME/CFS are pretty good, they don't push the BPS approach at all, on the contrary. They very obviously base many of their...

She also wrote an article in The Washington Post about how ME/CFS affected her ability to participate in social/religious activities and how it was kind of a blessing to her when all these things had to be carried out online due to the pandemic. For years, my chronic illness kept me isolated...

ME battle ‘must not be repeated with long Covid’, says chair of Cambridge support group Great article in the Cambridge Independent where Dr Mark Harper, chair of the local ME support group shares his thoughts on several different topics, including long covid, GET, CBT and the current revision...

Some COVID-19 long-haulers are developing a 'devastating' syndrome Very good and quite detailed article, featuring Alain Moreau and Lucinda Bateman and also quoting Anthony Fauci (what he said at that meeting of the American Academy of Neurology recently). "Worryingly, Moreau said a lot of the...

"Had Michael Sharpe handcuffed himself to the front entrance of the NICE offices in protest at the draft recommendations?" :rofl:

Sure! I had already shared it before but it was a long time ago. :) ME/CFS and the covid vaccines: https://www.facebook.com/groups/226441995768222 I haven't really checked it lately, after being vaccinated myself but I think if you click on "Announcements" you can also find some links to some...

Medical News Today: Long COVID and children: The unseen casualties of COVID-19 https://www.medicalnewstoday.com/articles/long-covid-and-children-the-unseen-casualties-of-covid-19 Quite a long article, focusing a bit more on personal experiences (coming from the moms who mostly get blown off by...

First decent article in Hungary that discusses the connection between long covid and ME/CFS (which was not written by me) So far, there have been only 1-2 short mentions of ME/CFS in the country in this respect, but either in the wrong context (psychosocial) or from someone not really...

So I started reading it and although I'm far from being finished, I found this part very interesting about sensory sensitivities.

Extremely Severe ME/CFS—A Personal Account "A personal account from an Extremely Severe Bedridden ME/CFS patient about the experience of living with extremely severe ME/CFS. Illness progression, medical history, description of various aspects of extremely severe ME/CFS and various essays on...

Hm, this sounds like before covid-19, we had no idea what other viruses could trigger ME/CFS. Also, about long covid Koroshetz said: "We do know, unfortunately, that it's not a minor problem," he added. "We also know now that the hope that this might be something like infectious mononucleosis...

Edit: Robin Brown = Dr Hng This thread has been copied to create a new organisation thread: Doctors with ME

So this probably isn't new information to many of you but it was to me because I didn't really know who George Monbiot was before the Michael Sharpe incident. Very recently I also saw him in the documentary Seaspiracy as one of the people sharing their opinion on the subject of industrial...

ABSTRACT Background We followed college students before, during, and after infectious mononucleosis (IM) for the development of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Aim We used network analysis to study relationships between pre-illness cytokine data amongst three...

Thank you! It turns out she has already seen Unrest and Forgotten Plague. This was my first ever "letter to the editor" and it looks like I've hit gold. :)

From the oldest Hungarian women's magazine. Long interview, I included only the ME/CFS part here (Google translate): Dr. Judit Balázs on the psychopandemic: More and more people are already turning to us with psychiatric complaints We talked about the mental effects of the epidemic, post-covid...

Abstract Impairment of health after overcoming the acute phase of COVID-19 is being observed more and more frequently. Here different symptoms of neurological and/or cardiological origin have been reported. With symptoms, which are very similar to the ones reported but are not caused by...

There's no specific medication for the chronic fatigue of post-covid syndrome I've found the first doctor who actually talked about chronic fatigue syndrome in connection with long covid in Hungary. So far every doctor only saw it as either organ damage or a psychiatric problem and long covid...

I think the two situations are probably different. My fatigue is not secondary or a result of insomnia, since I don't have insomnia but hypersomnia/somnolence. I get enough sleep, way more than enough actually (which is then never enough actually...). This extreme fatigue is part of my PEM...

I think it's due to the large variation in symptoms. I do have the extreme fatigue, it is one of my most debilitating symptoms along with cognitive dysfunction. I remember @Bill had it too. It is very abnormal, more comparable to a feeling of being sedated with something than to anything else...