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  1. rvallee

    "The motivations behind science denial", 2019, McLintic (CFS mentioned)

    So looks more like an off-hand remark that probably coincided with the Reuters report, didn't bother digging at all, just repeated it casually assuming it's true. It's not even a convincing argument since it even misrepresents what trolling is, something that is done by people who don't care one...
  2. rvallee

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    Those are all aspirational and do not describe real things, just things they wish they were able to do. It reads like a comedy sketch on pseudoscience-based medicine.
  3. rvallee

    Mediation analysis re: cognitive behavioural therapy in Q fever fatigue syndrome, 2019, Knoop et al

    This is so damn pathetic. How are people not embarrassed enough to bury this putrefied corpse and let it rot there where it belongs? Decades of doing the exact same 2 pieces of research with small variations, loads and loads of speculation and poor attempts at justifying that it's not the...
  4. rvallee

    "Positive Health Statement" - Job Centre Plus

    The ideology that lead to it, however, is pretty much in complete control. The document may have been withdrawn but the people who think it's great are still there, believing the same BS and trying to find ways to have the same outcome without being so blatant about it. We certainly know all...
  5. rvallee

    Status of CFS/ME (2019) Brinth et al Danish Medical Journal (Ugeskriftet.dk)

    It's truly the involvement of clueless people like this that ruins everything, impairs progress and maintains magical thinking. Listen to those few handfuls of people who say something that somewhat supports my beliefs and ignore the thousands and thousands all over the world who I disagree...
  6. rvallee

    EU Petition 2019 - opportunity to lobby for funding for ME research

    This is a BS reply. Could have just said "F off", same message.
  7. rvallee

    Article: Canada - After long-awaited recognition, research begins in earnest around chronic fatigue | CBC News Oct 2019

    There was local news from Edmonton about the research network. Not as good as the CBC report but the facts are OK. A local researcher was interviewed. "Chronic fatigue" again, though. Ugh. In French but Dr Moreau did an excellent interview on a CBC radio show (whose name is a seriously great...
  8. rvallee

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    What's weird is that for PACE they simply noted their transgressions and had them approved in secret. It worked then and was cleared on the basis that it was all reported and so the transgressions magically become irrelevant, can't see why not do it the same way again. Hubris, maybe? After all...
  9. rvallee

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    What's there to learn? The people most responsible, especially Horton, didn't even get any blame. That's about as clear a green light to do it again as it gets. Not much surprise that there so many similarities.
  10. rvallee

    Trial By Error: “Bristol, It Is Time to Withdraw Your Complaints to Berkeley”

    Turns out the complaints were vexatious and unfounded. In other words: lies. Who could have seen this coming? :whistle::rolleyes: The claims of harassment were also vexatious and unfounded, a tribunal actually scolded them. Not exactly paragons of integrity, or even seemingly capable of basic...
  11. rvallee

    Solve ME/CFS Initiative: ME/CFS Advocacy Week and DC Lobby Day 2020

    May every year of this be bigger than the last, until it is needed no more. I got shit to do and stuff, as we do all. This sick thing is really not all it's cracked up to be, at least according to some weirdos' bizarre ideas about the "sickness role", whatever that is.
  12. rvallee

    "The motivations behind science denial", 2019, McLintic (CFS mentioned)

    What a lazy argument. Science is never settled. That's what makes it successful. And there is no need to demand access to data when it is openly shared, especially when it is mandated by contractual obligations and public funding. The PACE authors made it difficult because they had something to...
  13. rvallee

    CDC Treatment Evidence Review - consultation period

    Uh, odd framing, that opioids are ineffective. Of course they are, they just bring many other problems in. Like anti-depressants, and yet they are still handed out using those shirt cannons at sports events. So opioids are not a panacea, but of course they are still effective at reducing pain...
  14. rvallee

    A general thread on the PACE trial!

    Despite spending too much time on Twitter and following some of those who commented, I missed this thread yesterday. So always good to post them here, especially when there are requests for more information. I added two articles.
  15. rvallee

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Many excellent comments. Thanks to those those who contributed.
  16. rvallee

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    € £ $ ¥ And so on. That's it. Some people see the savings and fund research that bring them more savings. Mostly motivated by the insurance industry, which is humongous. Nevermind that it's vastly more expensive overall, but that never stopped anyone from making selfish choices.
  17. rvallee

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Ah. Yeah. The logic of "I'm not an expert but here's my opinion as an expert" is quite something. As if this were any more complicated than it is. No doubt the author would absolutely rail about the very same methodological flaws if he found them elsewhere. A child could understand the problems...
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