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"The Winter edition of the Sussex & Kent ME/CFS Society’s quarterly 16 page newsletter has been published. Included in this issue are items about the Malmaison Conference by Prof Les Findley, Anna Gregorowski (BACME), Dr Gabrielle Murphy, Caroline Lucas MP and James Shute of the Sussex CFS/ME...

Japanese youths suffering fatigue from aftereffects of COVID infection https://mainichi.jp/english/articles/20211124/p2a/00m/0na/018000c

This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected https://www.mdpi.com/journal/healthcare/special_issues/me_cfs_issue

interesting reference to spinal tap...... Trudie Chalder in one of her presentations talking about the development of the CFQ "So to get us started; with Simon and I think its more Simons research than mine that we developed a fatigue scale, which is now called The Chalder fatigue scale, but I...

Illness-Related Cognition, Distress and Adjustment in Functional Stroke Symptoms, Vascular Stroke, and Chronic Fatigue Syndrome Abbeygail Jones , Abigail Smakowski , Alicia Hughes , Anthony S. David , and Trudie Chalder Abstract. Background: High rates of psychological distress are reported...

Chief Investigator Dr Alicia Hughes https://www.flexproject.co.uk/info-sheet.html latest publication Illness-related cognition, distress and adjustment in functional stroke symptoms, vascular stroke, and chronic fatigue syndrome Jones, A., Smakowski, A., Hughes, A., David, A. S. & Chalder, T...

from similar article in the Sun "The diaries came to light five years ago, when Elinor died in a nursing home aged 69 after developing an infection."

There was a large piece on long covid on Channel 4 News last night; no mention of post-viral illnesses let alone ME/CFS.........it was 'all new', and the researcher interviewed optimistically predicted they might have some answers by next year. o_O

This was discussed on BBC radio2 today. Interesting that most people who said it had been very helpful talked about 'counselling', as opposed to CBT which seemed to have more mixed responses.

https://www.psychologytoday.com/gb/blog/the-mental-health-revolution/202111/missteps-in-creating-long-haul-covid-case-definition

Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM) preprint Abstract Background: Myalgic Encephalomyelitis / Chronic...

Australian National University event Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 1–1.30pm Thursday 25 Nov 2021 zoom https://rsph.anu.edu.au/news-events/events/myalgic-encephalomyelitischronic-fatigue-syndrome-mecfs

No Evidence That The Improving Access to Psychological Therapies (IAPT) Service Does Any Better Than Contact With The Citizen’s Advice Bureaux (CABx)...

thread https://www.s4me.info/threads/telford-woman-releases-book-to-help-children-understand-adult-illness-2019.12502/ eta: see tag 'book' for other threads on books.

So I take it the BMJ don't check the rapid responses? eg her twitter account doesn't exist and she says she got the 30% figure of pwME/CFS from the BMJ app. (nothing against her personally, there is quite a lot of info about her and the loss of her son on the net) and it's clearly an attempt...

where on earth did they get that figure from?

"The overview looked at eight Cochrane Reviews, including 51 discrete TENS‐related randomized controlled trials (RCTs) with 2895 participants.[7] With such a large body of evidence one might expect a precise and reliable estimate of the treatment effect of TENS for chronic pain. Rather, the...

this video is still there for CFS patients; it was supposed to have been reviewed in Aug 2021.

i wonder if anyone else use the word 'joke' when talking about mandatory reconsiderations? shame they don't use emojis. :nailbiting::cautious::thumbsdown::banghead::arghh::ill: