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I've done the survey. But I suspect this has more to do with them combining PIP and ESA assessments rather than actually improving the assessment process for 'clients'. https://www.s4me.info/threads/uk-disability-benefits-esa-and-pip-updates-news-and-articles-2021.19246/page-2#post-359835 sadly...

has anyone else contacted him to tell him about the problems with this survey?

KCL 17 November 2021 Researchers confirm link between testing positive for COVID-19 and fatigue and sleep problems https://www.kcl.ac.uk/news/researchers-confirm-link-between-testing-positive-for-covid-19-and-fatigue-and-sleep-problems

Full title: Association of SARS-CoV-2 Infection With Psychological Distress, Psychotropic Prescribing, Fatigue, and Sleep Problems Among UK Primary Care Patients Kathryn M. Abel, MD, PhD1,2,3,4; Matthew J. Carr, PhD4,5,6; Darren M. Ashcroft, PhD4,5,6; Trudie Chalder, PhD7; Carolyn A...

The Andreasson lab https://www.su.se/english/research/research-groups/the-andreasson-lab?open-collapse-boxes=research-group-members,research-group-projects Fatigue cohort: A longitudinal study of persistent complicated fatigue...

Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) differ for triggers, mode of start, associated symptoms, evolution, and biochemical traits. Therefore, serious attempts are underway to partition them into subgroups useful for a personalized medicine approach to...

yes quite but it seems to have now taken on a life of its own. also if you do a search on 'nhs post-exertional malaise' ironically the main nhs england website myalgic encephalomyelitis/chronic fatigue syndrome comes up and yet there is no mention of post-exertional malaise.

this website has been updated in 2019. Posted on 09/05/2019 The science behind why M.E. does NOT make you “lazy” https://www.nrshealthcare.co.uk/articles/news/the-science-behind-why-m-e-does-not-make-you-lazy

have reported the link from the library thread https://www.s4me.info/threads/the-pace-trial.22088/ be amended to https://www.qmul.ac.uk/wolfson/research-/current-research-projects/projects/pace-trial.html

I know that; I was mixing it up with the similar research that Crawleys lot are doing https://www.s4me.info/threads/pomme-study-paediatric-outcome-measure-me-2020-crawley-et-al.19524/#post-331486

https://www.nbt.nhs.uk/our-services/a-z-services/bristol-me-service/bristol-me-service-news M.E./CFS Useful Resources https://www.nbt.nhs.uk/our-services/a-z-services/bristol-me-service/mecfs-useful-resources

Merged thread Article now published. https://link.springer.com/article/10.1007/s11606-021-07188-4

ME on its own still hidden away here https://www.england.nhs.uk/ourwork/clinical-policy/ltc/our-work-on-long-term-conditions/neurological/ should this not be ME/CFS now? Haven't read this Transformation Guide for Commissioners The work has resulted in publication of a report to support...

Don't know if these have been posted somewhere FOI2017-020: Spending on MRC-funded trials PACE and FINE Request date: 22 May 2017 Response date: 20 June 2017 8 files https://www.whatdotheyknow.com/request/the_pace_trial_white_et_al_2011#incoming-329168

https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing

carolines kitchen disco?

https://www.s4me.info/threads/bps-attempts-at-psychologizing-long-covid.16013/page-25#post-322703

NOT a recent FOI but from 2015 following the IOM report; many familiar names, thought it might be of interest here. https://www.whatdotheyknow.com/request/357691/response/883778/attach/2/FOI%20EH73066%20Redacted%20documents%20for%20release.pdf

Researcher Q&A and Wrap-Up | MassME 2021 Annual Meeting Part 12/12

Dr. Maureen Hanson directs the National Institutes of Health (NIH) ME/CFS Collaborative Research Center at Cornell University, the Cornell Center for Enervating Neuroimmune Disease, where she and her colleagues investigate the biological mechanisms underlying ME/CFS (myalgic...