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As it is a Regional paper there’s a strong possibility this will also pop up elsewhere in the country due to common ownership or syndication.

And don’t forget to donate to the gofundme :whistle:

Oops must be an England Rugby fan

how about some tiny mouse shopping bags, or standing on a paper sheet and squeaking stop in mouse. Eta. Just to say this comment ^ is obviously flippant but I also disagree with using mice/rats

As a simple non scientist I think that whatever movement the step counter reacts to for that individual if a given intervention results in them moving say 10% 25% or 50% more in months following than in months before the intervention then that’s evidence of them being able to do more.

On the Guardian article specifically I just went to the home page and I had to do some scrolling it wasn’t highlighted near the top of the health headlines I had to click a link for more and it was down the bottom. For the general public this will not really register. It is there more for...

They are all adding their names because they are all believers in psychosomatic cause.

Oh specific multidisciplinary care when you really mean CBT/get

Wish he would properly retire.

Haven’t checked but surely as a public body they are subject to FOI

Maybe nowadays, they published some of the worst articles in the past - militant patients

Probably best referred to ME Association to tackle. As they have done with LP website

It’s a real mix. At least those who normally live in the alternative bubble will potentially be exposed to more sensible ideas. What is Methylene Blue? It sounds suspiciously like loo cleaner.

I use cuticle oil to improve the condition of my nails I have ridges that are more noticeable nowadays. Buffing the nails makes them a bit smoother or a clear base coat of polish if either of those is tolerable

If it was patient centric it would say online as default, the approach taken of breaking a one day event into 3 zoom meetings over 2 weeks by the James Lind Alliance meant that no one had to travel so no additional energy over and above the actual participation, and no financial costs. I...

Agreed on hybrid meetings. Unless everyone is wearing a headset and the meeting is disciplined with no talking over or side chat it is very difficult to follow. The people in the room have to behave as if they were all on a zoom. also just because someone can manage travel doesn’t mean it’s...

Also on this point of LC people not getting ME diagnosis it’s highly unlikely to be something LC advocates would be interested in engaging with much less promoting to TV as their focus is on getting LC accepted as an occupational illness - evidenced by the recent BMA paper.

Yep both definitely happen for me. Both physical and cognitive. As well as getting physically drained mostly linked to orthostatic issues standing for say 10 minutes will do it or sitting for a meal out. I experience cognitive issues during activity eg if I’m socialising with family or on a...

@JemPD interesting idea of approaching Ed Stafford. Maybe picking up from his approach of engaging with people to get their first hand experience he could spend time with some people with ME, their family in their homes. to the extent that would be possible.

On NICE implementation I just reiterate my usual point, there are places, ICBs now, that have literally nothing for people with ME/CFS they would, if diagnosed at all, if referred at all be directed to generic mental health/pain provision. I suspect that the long covid people we hear of who...