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I seem to recall White had health problems (cancer?) which may explain why he has been relatively quiet.

He was a co-author with White in 2007. 'Trends in European labour markets and preferences over unemployment and inflation,' Bank of England Quarterly Bulletin, 2007Q4, pp. 582-591, 47(4). With Douglas Staiger and Peter D. White, 'Nurse pay and quality of care,' working paper. From his CV...

Here's an earlier paper by Twisk: Front Physiol. 2014 Mar 27;5:109. doi: 10.3389/fphys.2014.00109. eCollection 2014. The status of and future research into Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: the need of accurate diagnosis, objective assessment, and acknowledging biological...

It's from the Times Literary Supplement and by Andrew Scull. https://www.the-tls.co.uk/articles/public/egos-experiments-social-psychology/ Review of

I have tried a bit on this. When Amol Rajan became the presenter of the Media Show on BBC, I sent him an email. No reply. I sent an adapted version to Jim Waterson when he was appointed media editor of The Guardian. Same lack of response. It's one of those things I want to spend more time on...

Moderator note: post from this thread moved to one of its own Complaint about process of NICE review of ME/CFS Guidelines Two short posts asking if the original referred to the survey then made no sense and so were deleted.

That is very interesting. I remember reading of another similar survey in NY city that showed how infections and rates of mortality went down for the three years following measles vaccination.

I think the blog sounds outdated. It doesn't take into account the much fairer coverage there has been in the media and the slow dying of the 'dangerous militants' narrative, which she has in fact breathed life into once again. I think the blog is damaging.

Hi, Russ, thanks for the reply. Hope you're doing OK. Yes, I know some do use medication and have no problems with that as an option. It was the combining of the two different issues that made it impossible for me to pick what I wanted to select. Sure, I could do that.

Moderator note: A new thread on the N & S resources for GPs has been started here https://www.s4me.info/threads/resources-for-gps-by-norfolk-suffolk-me-and-cfs-services.7599/

Moderator note: posts on speech to AfME Conference 2014 by Gabrielle Murphy moved to new thread here: https://www.s4me.info/threads/speech-to-me-research-practice-conference-2014-gabrielle-murphy.7597/

The closest it gets is point 2: An understanding of the impact of symptoms and awareness of pharmacological symptom management But I don't understand why these two quite separate issues are joined together in one point. I absolutely want GPs to have a proper understanding of the impact of...

Agree we need to see what follows in next two blogs, but I would point out that an 'advocate' is hard to define and no one decides who is and is not an advocate or what work any advocate does (or indeed the approach they take). It's all about those able to make a contribution finding ways they...

Thanks @chrisb

That's the pre-trial protocol criteria isn't it? And not the SF-36 PF <60 used in the analysis?

Don't suppose you have a link for that do you?

Excellent blog on this by @Lucibee Why use of subjective measures in clinical trials can be problematic https://lucibee.wordpress.com/2019/01/08/why-use-of-subjective-measures-in-clinical-trials-can-be-problematic/

Thanks.

The file is a bit odd. I have done a screenshot of the body of the email sent in reply to the request for guidance. The original request has been redacted.

I'm hoping that enough pressure can be put on them to share the data.