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  1. Louie41

    Article: qEEG Brain Research at DePaul University (Jason, Zinn) by Megan Doherty

    i'll be interested to see this study when published. I sure feel like my brain is only half-aroused!
  2. Louie41

    How many hours of sleep a night do you need? - Now with Poll

    I take so many pills of various kinds that I just take them together three times a day: 10:15 am, 3:30 pm, and 9:30 pm. I've never paid much attention to whether my stomach is empty or not, but it must be--relatively so--at these time. Sorry I can't be more precise. Good luck with the NAC...
  3. Louie41

    Leonard Jason wants ME/CFS patients to do a PEM survey

    it seems to depend totally on the city, and sometimes even on which part of the city.
  4. Louie41

    Caretaking resources and info needed

    Dear @Kafka, It breaks my heart to hear this. Sadly, I have no written resources to suggest to you. Depending on your local programs, you might be able to get home-based assistance (grocery shopping, handyman, homemaking, food prep, e.g.) that would free you up to take good care of yourself...
  5. Louie41

    Weds 11 April, 2pm | One-minute silence in memory of 'Bob' - Robert Courtney

    Also in US Central Time zone. I shed a few tears for Bob. "And this is the Comfort of the Good, that the Grave cannot hold them, and that they live as soon as they die.. . . . . "Death is but Crossing the World, as Friends do the seas; they live in one another still. . . " William...
  6. Louie41

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    I really like #Justice4ME. There will, after all, be some context that will clarify that it refers to myalgic encephalomyelitis, won't there? And what's wrong with saying Justice for Me? We do need justice. I was sick for a long time before I figured out the "Pw" part. Does it mean...
  7. Louie41

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Oh, poo! :banghead::banghead::banghead: Thanks, @Keela Too . . . .sigh Being a Twitter troglodyte does have its downside.
  8. Louie41

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Don 't want my suggestion to get lost in the point about PwME.;) #4MEScience?
  9. Louie41

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    #4MEScience? I wonder if use of PwME in any form will be confusing for people who support us, but aren't conversant with that term. Think this is a great idea, by the way, @Kalliope! :thumbup::thumbup:
  10. Louie41

    Sinus pain - no mucus - and related issues

    @Agapanthus So sorry to hear that both you and @MeSci are having such a hard time. I have no suggestions for your nasal issues or lack of sleep. So I'm just sending hugs and good thoughts! :hug::hug::hug:
  11. Louie41

    Simon McGrath launches ME/CFS Research Review science blog

    I look forward to reading your blogs, @Simon M, on those occasional days when my brain is not mush! This will meet a serious need for us non-scientuific types. Thanks in advance.
  12. Louie41

    Using Heart rate monitoring to help with pacing.

    Don't worry, @Stevo. You'll get there.;)
  13. Louie41

    Anyone has a stair lift at home ? (Moving, part II)

    We have 2 stairlifts, one going to the upstairs, and one to the basement. We bought them new, and together they were about $6000 USD, if I recall correctly. This is one of the best decisions we've ever made. I wouldn't be able to use stairs any more, and my husband uses them to bring laundry...
  14. Louie41

    How many hours of sleep a night do you need? - Now with Poll

    Thanks, @Alvin and @MarcNotMark, for the info on these studies. I'll check this subject out further soon.
  15. Louie41

    How many hours of sleep a night do you need? - Now with Poll

    Sure, @Alvin . For a long time, maybe 15 to 20 years (my onset was 1990), I'd go to bed exhausted, but then would just lie there with my mind buzzing around, unable to sleep. So I'd finally get up, go into my computer, and play Freecell for hours--at least until 3 or 4 a.m. and sometimes until...
  16. Louie41

    House built on old golf course - yes or no ?

    Very interesting, @MsUnderstood . Thanks.
  17. Louie41

    House built on old golf course - yes or no ?

    What a thoughtful and complete list of considerations,@MsUnderstood! I was reminded of my father, who was driven out of his new condo, after a lifetime of living in detached housing, by the myriad small sounds coming from others in the building. This was in new construction touted to be...
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